28th Annual North American Cystic Fibrosis Conference

Oct 9, 2014 ‐ Oct 11, 2014



The synchronized sessions from the 2014 NACFC are NOW AVAILABLE!

Full NACFC registrants have complimentary access to the recordings of the 2014 NACFC Plenary sessions, Symposia and Workshops.

Short Course presentations held on Wednesday, October 8, are also available for an additional fee. To purchase access to the Short Course presentations, click here.


Sessions

W01: CFTR; CFTR 2014W01: CFTR; CFTR 2014

Preview Available

W01: CFTR; CFTR 2014

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

This session focuses on recent discoveries relating to (1) the molecular defects of CFTR mutants; (2) the identification, development, and characterization of novel CFTR modulators; and (3) therapeutic implications.

Speaker(s):
Standard: $49.99

W10: PT & RT: Musculoskeletal Issues in CF

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

This session will discuss the current research into different aspects of examination and intervention of musculoskeletal issues in patients with CF.

Speaker(s):
  • Matthew Nippins, P.T., D.P.T., C.C.S., Senior Physical Therapist, Massachusetts General Hospital
  • Aimee Burdick, P.T., D.P.T., Physical Therapist, Miller Children's Hospital
  • Marcio Donadio, P.T., Ph.D., Centro Infant, PUCRS
  • Zachary M. Sellers, M.D., Ph.D., Pediatrics Resident, Stanford University
  • Karla Foster, M.S., Exercise Physiologist, Cincinnati Children's Hospital Medical Center
  • Scott P. Russell, D.P.T., Instructor of Clinical Physical Therapy, Keck Hospital of University of Southern California
  • Brenda Maud Button, Ph.D., Adjunct Clinical Associate Professor
Standard: $49.99

W02: APP&D: Airway Mucus Clearance: Ions, Fluid & Mucus

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

This session will highlight the recent and important advances in understanding the mechanisms underlying altered mucus clearance in the CF airway. These talks will focus on three aspects of mucus clearance; fluid secretion, ion transport, and mucus properties and composition. Additionally, the information presented will focus on inter-relationships between these facets of the mucus clearance apparatus.

Speaker(s):
Standard: $49.99

W03: GMS: Cell, Organoid & Animal Models

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

This workshop will focus on emerging research models for investigating the pathogenesis and treatment of cystic fibrosis. In addition to new animal models including the CF rat and ferret, cellular models to be presented range from cell lines expressing multiple CFTR mutations to primary culture methods expanding human airway tissue, generating organotypic structures and investigating male reproductive tract biology. Emphasis is placed on the advantages these research methods offer for investigating the multiple manifestations of CF disease.

Speaker(s):
Standard: $49.99

W04: INF/MIC: Epidemiology & Management of Infection

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

This workshop will review the latest trends in respiratory microbiology based on US CF Registry data. This session will also focus on the long-term impact of successful Pseudomonas aeruginosa eradication on health outcomes and the chronic use of inhaled liposomal amikacin in the management of chronic Pseudomonas aeruginosa infection. The results of a large survey will also be presented examining antibiotic utilization to treat Mycobacterium abscessus infection. Lastly, the usefulness of biofilm antimicrobial susceptibility testing and microbiome analysis in the management of CF pulmonary exacerbations will be presented.

Speaker(s):
  • Bradley S. Quon, M.D., M.Sc, M.B.A., Clinical Research Fellow, University of British Columbia
  • Jane L. Burns, M.D., Professor, Pediatrics/Infectious Diseases, Univ. of Washington School of Medicine
  • Nicole Mayer Hamblett, Ph.D., Biostatistician, Children's Hospital & Regional Medical Center
  • Emily Knapp, Patient Registry Senior Coordinator, Cystic Fibrosis Foundation
  • Diana Bilton, M.D., FRCP, Consultant Physician & Honorary Senior Lecturer, Royal Brompton Hospital
  • Kelly A Holcomb, Pharm.D., Pharmacist, University Of Utah
  • Valerie Waters, M.D., M.Sc., Associate Professor
Standard: $49.99

W05: CLIN: Applying eQUIP at Your Center: Crisis Communication Plan Development

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

This workshop will help you understand the importance of having a Crisis Communication Plan; as well as give you examples of what other sites have experienced and learned while creating their plan. You will come away with tools, ideas and motivation to make your own Crisis Communication Plan. If a CF patient has a life-threatening event while enrolled in a clinical trial, having a Crisis Communication Plan can prevent a catastrophe.

Speaker(s):
  • Patricia A. Burks, R.N., M.A., CCRC, Director of Clinical Trial Affairs
  • Cynthia M Gile, B.S., CCRC, Certified Clinical Research Coordinator, Spectrum Health
  • Ginger A. Reeves, BS, RRT., CCRC, Clinical Trial Administrator, UAB at Birmingham
  • Colleen E. Dunn, B.A., Translational Research Manager
  • Karen S. McCoy, M.D., CF Center Director, Nationwide Children's Hospital
  • Churee Pardee, M.S.N., R.N., Advanced Practice Nurse, Children's Hospital Colorado
  • Nadine K. Caci, B.S.N., R.N.C, CCRC, Clinical Research Coordinator, Women & Children's Hospital of Buffalo
  • Brooke Noren, R.N., B.S.N., CCRC, Research Nurse Clinician, University of Minnesota
Standard: $49.99

W06: CLIN: Advanced CF Lung Disease & Transplantation

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

This workshop is intended to address the management of CF patients with advanced lung disease. The session will include a discussion of CFTR modulation in patients with advanced lung disease. A broad array of topics in lung transplantation will be reviewed. Transplantation will be discussed from pediatric and adult viewpoints as well as from an international perspective.

Speaker(s):
Standard: $49.99

W07: NRS: Aftermath of Newborn Screening: Challenges for Healthcare Providers

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

Mandatory newborn screening (NBS) for CF in the US and in other countries has brought attention to new challenges and considerations for healthcare providers. Education and coordination of care with primary providers for testing is just one of many issues that have been experienced by CF care centers. This workshop will explore the way one center addressed this issue. This workshop will also look at how caregivers have responded to carrier status identification; parental understanding of NBS and their psycho-educational needs. The potential for postpartum depression following NBS will be explored and the parent of a child diagnosed by NBS will share her experience and thoughts.

Speaker(s):
Standard: $49.99

W08: SW/PSYCH: Back to Basics: What Is Palliative Care?

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

Palliative care should continue across the spectrum and lifetime of a cystic fibrosis patient. However, it is often a misunderstood and underutilized service. We will have a multidisciplinary panel present and explain what palliative care is, some innovative ways and tools to apply it to clinical practice, and reasons why it is important to screen for need and appropriately intervene with palliative care early in treatment and throughout the patient's life.

Speaker(s):
Standard: $49.99

W09: NTR: Current Topics in Nutrition

Oct 9, 2014 10:00am ‐ Oct 9, 2014 11:45am

Research on the importance of nutritional status on outcomes in cystic fibrosis has established a strong association between the two. In this session, we will explore the current state of infant feeding practices. The role of pancreatic enzyme replacement therapy on nutritional status in early childhood and on health care utilization will also be explored. Monitoring of nutritional status has been centered around attaining an optimal BMI, but over-reliance on this measure may lead to missed opportunities. These topics will inform development of nutritional intervention algorithms designed to improve nutritional status.

Speaker(s):
Standard: $49.99