28th Annual North American Cystic Fibrosis Conference

Oct 9, 2014 ‐ Oct 11, 2014



The synchronized sessions from the 2014 NACFC are NOW AVAILABLE!

Full NACFC registrants have complimentary access to the recordings of the 2014 NACFC Plenary sessions, Symposia and Workshops.

Short Course presentations held on Wednesday, October 8, are also available for an additional fee. To purchase access to the Short Course presentations, click here.


Sessions

W15: INF/MIC: Pathogenesis of Infection

Oct 10, 2014 2:00pm ‐ Oct 10, 2014 3:45pm

This workshop will provide attendees an overview of research submitted as abstracts pertaining to pathogenesis of infection in CF. Topics relate to the intersection of microbial virulence and the host immune response that modulates the disease process. Approaches utilize a spectrum of in vitro, in vivo, animal models and clinical/human subjects strategies.

Speaker(s):
Standard: $49.99

W16: CLIN: Endocrine & BoneW16: CLIN: Endocrine & Bone

Preview Available

W16: CLIN: Endocrine & Bone

Oct 10, 2014 2:00pm ‐ Oct 10, 2014 3:45pm

This workshop contains presentations of research submitted as abstracts pertaining to Adult and Pediatric Endocrinology in CF (including diabetes & bone). Topics this year related to bone disease include direct assessments of bone quality in human bone samples, the effect of CFTR correctors on CF osteoblasts and bone disease in the CF rat model. Topics pertinent to diabetes include a report of early glucose abnormalities in infants and children with CF, the role of advanced glycation end products in CFRD, prediction of CFRD using a genetic modifier of CFRD in conjunction with lab testing during the first years of life and the effect of CFRD on survival of UNOS registrants.

Speaker(s):
Standard: $49.99

W17: CLIN: CF Pulmonary Disease: Evaluation & Treatment

Oct 10, 2014 2:00pm ‐ Oct 10, 2014 3:45pm

This workshop will review clinical research on the evaluation and treatment of pulmonary manifestations of cystic fibrosis. The research presented will include predictors of disease severity and response to treatment as well as a novel imaging technique utilizing magnetic resonance. The session will also explore how the addition of therapies such as hypertonic saline and ivacaftor may benefit cystic fibrosis patients.

Speaker(s):
Standard: $49.99

W18: NRS: Caring for the Patient With Advanced Disease

Oct 10, 2014 2:00pm ‐ Oct 10, 2014 3:45pm

The presentation of advanced lung disease patients in the cystic fibrosis population is becoming more common due to improved treatment strategies which extend life. Caregivers are required to be well versed in the care of this population including introduction to palliative care, lung transplant, and advanced directives. Special considerations in the administration and compliance with immunosuppression, pain therapy, and antibiotic treatments is critical in the advanced lung disease patient.

Speaker(s):
Standard: $49.99

W19: SW/PSYCH: Inpatient Behavior & Adherence: A Collaborative Approach

Oct 10, 2014 2:00pm ‐ Oct 10, 2014 3:45pm

This session will explore the multiple facets of patient education, as well as collaboration and communication between the CF Care Center and in-patient staff when implementing behavioral interventions for pediatric patients in the hospital setting. 

Speaker(s):
  • Lisa C. Greene, M.A., CFLE, Executive Director, Parenting Children With Health Issues
  • Jamie Cary, B.A.
  • Margaret Zick, M.S., CCLS, Child Life Specialist, Upstate Golisano
  • Kim York, M.S.W., Social Worker, AI duPont Hospital for Children
  • Stephanie Filigno, Ph.D., Clinical Psychologist, Associate Professor Pediatrics
  • Nicholas J. Antos, M.D., Associate Center Director, Pediatric Pulmonologist, Medical College of Wisconsin
  • Heather H. McKee, LCSW, Social Work Coordinator, All Children's Hospital
Standard: $49.99

W20: PT & RT: Airway Clearance Prescriptions in Difficult Clinical Situations

Oct 10, 2014 2:00pm ‐ Oct 10, 2014 3:45pm

This workshop will focus on clinical scenarios and novel methods of delivery and enhancement of airway clearance and invite discussion from a mixed audience of physical and respiratory therapists, primary providers and researchers. Invited speakers will define difficult situations, especially in the adult CF patient, as well as pulmonary and extra-pulmonary physical barriers to effective airway clearance. The second portion of the workshop will explore research into novel methods of approaching the current standard of care of airway clearance and means to improve and augment current standard practice.

Speaker(s):
Standard: $49.99

P3: CF Advisory Board Track: From Codman to Collaboratories: A Care Model for CF That's Fit for the Future

Oct 11, 2014 9:00am ‐ Oct 11, 2014 10:00am

Patient registries & collaboratives for learning, research and improvement have existed for centuries but are now undergoing explosive growth and innovation. This points the way to a care model for CF that is fit for the future. In this presentation we will (a) review the past, present and future state of registries & collaboratives (b) introduce 3 ways to create healthcare value (c) introduce a design that the CF community could use to build a care model that’s fit for the future. Imagine a CF collaboratory capable of delivering better measured outcomes & value while creating conditions for personalized coproduction of care & collaborative learning- all based on advanced biomedical research

Speaker(s):
  • Eugene C. Nelson, D.Sc., M.P.H., Director, Dartmouth-Hitchcock Medical Center Population Health & Measurement
Standard: $49.99

S15: APP&D: CF Airway Inflammation & Therapeutic Targets

Oct 11, 2014 10:30am ‐ Oct 11, 2014 12:20pm

This symposium begins with an update on the inflammatory response in the CF lung. Airway epithelial and immune cells contribute to inflammation in CF. There is a large influx of neutrophils that release damaging mediators including proteases and oxygen radicals. The second talk focuses on the importance of cellular immunity in CF respiratory pathophysiology, which has only recently begun to be understood. It is well known that nitric oxide (NO) is decreased in CF exhaled gas. The significance of this and the use of NO as a therapy is discussed in the third talk. The final talk reviews the role of anti-inflammatory therapy in CF and provides an update on clinical trials in this area.

Speaker(s):
Standard: $49.99

S16: NT-CFTR: Treating Every Patient: Theratype Approaches to CF Intervention

Oct 11, 2014 10:30am ‐ Oct 11, 2014 12:20pm

The session will focus on new therapeutic approaches for CF patients carrying non-F508 mutations. Mutations have traditionally been grouped by their according to type (nonsense, missense, etc.) or by the CFTR functional classes. However, in the era of novel therapies it may be more useful to characterize mutations in terms of their response to particular therapies. We will discuss the CFTR2 project and how it has defined the genetic epidemiology across North America and Europe. We will also introduce therapeutic approaches for patients carrying nonsense and splicing mutations as well as the option of clinical trials for patients carrying rare or private mutations.

Speaker(s):
Standard: $49.99

S17: INF/MIC: Omics of CF Airway Infection

Oct 11, 2014 10:30am ‐ Oct 11, 2014 12:20pm

‘Omics” methods extensively characterize clinical specimens. The data from these increasingly sophisticated techniques can be correlated with clinical outcomes to identify candidate disease biomarkers and mechanisms, using intensive computational analytical methods. Recent discoveries using these tools have already changed our understanding of CF airway infection and inflammation. In this session, we will review the historical origins and recent progress in the study of the CF airway using these ‘omics approaches. We will discuss how, by characterizing the CF airway microbiome, transcriptome, metabolome and inflammasome, these tools are providing fresh insights into CF lung disease.

Speaker(s):
Standard: $49.99
Print Certificate
Review Answers
Print Transcript
Completed on: token-completed_on
Review Answers
Please select the appropriate credit type:
/
test_id: 
credits: 
completed on: 
rendered in: 
* - Indicates answer is required.
token-content
token-speaker-name image
token-speaker-name
token-index
token-content
token-index
token-content
token-index
token-content
token-index
token-content
token-index
token-content
token-index
token-content
/
/
token-index
token-content