28th Annual North American Cystic Fibrosis Conference

Oct 9, 2014 ‐ Oct 11, 2014



The synchronized sessions from the 2014 NACFC are NOW AVAILABLE!

Full NACFC registrants have complimentary access to the recordings of the 2014 NACFC Plenary sessions, Symposia and Workshops.

Short Course presentations held on Wednesday, October 8, are also available for an additional fee. To purchase access to the Short Course presentations, click here.


Sessions

W27: CLIN: QI: Engaging Patients & Improving Care

Oct 11, 2014 2:30pm ‐ Oct 11, 2014 4:15pm

The aim of this session is to explore the use of various quality improvement techniques, such as surveys and adherence monitors, when engaging families and those with CF to improve care. This workshop will highlight the impact of quality improvement in CF care coordination and follow up.

Learning Objectives:
  • Illustrate the use of patient surveys to generate a CF QI initiative
  • Examine the use of adherence monitoring in empowering patient engagement
  • Review the impact of Quality Improvement strategies to improve CF care coordination and follow up.
Speaker(s):
  • Paula H. Lomas, M.A.S., R.N., CCRP, Nurse Coordinator, Morristown Medical Center
  • Mark A. Chilvers, MRCP, M.D., Consultant, BC Children's Hospital
  • Martin Wildman, MRCP, M.Sc., Ph.D., Reader in Health Services Research, Birmingham Heartlands Hospital
  • Shine-Ann Pai, B.S., R.T., Out-Patient RRT RCP III
  • Hannah Parkinson, B.Sc. (Hons) Physiotherapy, Kings College Hospital
  • Preeti B. Sharma, M.D., Center Director, UT Southwestern
  • Nicky Murray, B.Sc. (Hons) Physiotherapy, Paediatric Physiotherapist in CF Homecare, Royal Brompton Hospital
  • Amy Garcia, M.D., Oregon Health & Science University
Standard: $49.99

W28: CLIN: Epidemiology in CF and Comparative Effectiveness Research

Oct 11, 2014 2:30pm ‐ Oct 11, 2014 4:15pm

This workshop will increase our knowledge about cystic fibrosis by presenting research identifying high-risk groups for poor health outcomes in CF, evaluating the real-world use of specific CF medications and identifying regional variations in the CF population using several large CF database sources.

Learning Objectives:
  • Identify high-risk groups for poor health outcomes in cystic fibrosis
  • Describe the uptake and experience of new CF medications
  • Discuss the epidemiology of cystic fibrosis as it relates to medications and health outcomes
Speaker(s):
Standard: $49.99

W29: NRS: The Newly Diagnosed Adult-Practical Approaches

Oct 11, 2014 2:30pm ‐ Oct 11, 2014 4:15pm

This session will describe the challenges faced when dealing with a newly diagnosed adult with Cystic Fibrosis (CF). Medical, psychosocial and educational considerations will be discussed. Patient cases will be presented with a proposed approach for this unique population. Recommended educational resources will be reviewed as well as a brief look into the patient experience of late adult CF diagnosis.

Learning Objectives:
  • Describe three medical considerations when dealing with an adult patient who is newly diagnosed with cystic fibrosis.
  • Identify potential psychosocial issues associated with a late cystic fibrosis diagnosis.
  • List three educational resources available for an adult diagnosed with cystic fibrosis.
Speaker(s):
Standard: $49.99

W30: CLIN-SW/PSYCH: CF Advisory Board Track: The E-Patient Experience

Oct 11, 2014 2:30pm ‐ Oct 11, 2014 4:15pm

Electronic health records, apps, tablets and social media - even centers that have been electronic for years are only starting to scratch the surface of what is possible. Electronic interventions hold significant potential for improving the delivery of care to our CF patients. This workshop will present how some centers have used electronic media, how our families and patients can help and how they perceive these new options.

Learning Objectives:
  • Appraise the use of telemedicine for improving contact and care
  • Describe mobile apps and educational tools that are being developed to help CF patients and families
  • Relate how the electronic medical record may be used to improve provision of care between patient and CF center
Speaker(s):
Standard: $49.99
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