31st Annual North American Cystic Fibrosis Conference

Nov 2, 2017 ‐ Nov 4, 2017


The North American Cystic Fibrosis Conference (NACFC) provides a collaborative and educational forum for CF professionals to help advance CF research and care. This annual meeting brings together scientists, clinicians, and caregivers from around the world to discuss and share ideas on the latest advances in CF research, care, and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.


Sessions

S17: CLIN: Health Care Reform: What's Happening & What Does It Mean for People with CF?

Nov 4, 2017 2:30pm ‐ Nov 4, 2017 3:55pm

Identification: S17

The cystic fibrosis care model is transforming in response to recent advances in CFTR therapies as well as broader patient needs. To ensure that all people with CF have access to the best available treatments, the current and future challenge will be working toward a payment system that supports coverage of high-quality, multidisciplinary team-based care delivered by CF clinicians. Uncertainty and instability in the health care system impose additional complexity and concern. This symposium will address how public and private payers, patients, clinicians, and researchers can develop and implement evidence-based policies in a politically and economically challenging environment.

Learning Objectives:

  1. Describe the current health care landscape and potential changes to health insurance that would impact people with cystic fibrosis.
  2. Describe the shift from volume-based payment for drugs and services to value-based payment in the context of cystic fibrosis care.
  3. Discuss how clinical data is used by payers in making coverage decisions.

Symposium Chair(s): Symposium Speaker(s):

S18: INF/MIC: Early Infection & Host Response

Nov 4, 2017 2:30pm ‐ Nov 4, 2017 3:55pm

Identification: S18

This session will focus on the early development of lung infection and host inflammatory response and the impact on clinical outcomes in cystic fibrosis (CF). Speakers will address issues including bacterial and viral infections, early disruption in microbial communities, inflammation and structural injury, as well as provide updates from large, longitudinal clinical studies of young children with CF.

Learning Objectives:

  1. Summarize the knowledge on microbial colonization of the lower airways in young children
  2. Discuss the impact of early infection on the outcome of children with cystic fibrosis
  3. Evaluate the importance of early screening for respiratory infections and inflammation

Symposium Chair(s): Symposium Speaker(s):

S19: NRS: Beyond the LungsS19: NRS: Beyond the Lungs

Preview Available

S19: NRS: Beyond the Lungs

Nov 4, 2017 2:30pm ‐ Nov 4, 2017 3:55pm

Identification: S19

While recognizing there are multiple issues which can and may affect the Cystic Fibrosis patient across the life span, this session will address four significant areas of major concern. Symposium attendees will hear presentations on current and pending guidelines for Cancer Screening, recognizing, diagnosing and effectively treating Cystic Fibrosis Related Diabetes, the importance of physical therapy and exercise, and arthropathy and musculoskeltal changes that can affect the CF patient throughout the life span.

Learning Objectives:

  1. Summarize Cancer screening guidelines, describe & apply recommended studies and appropriate screening for various cancers.
  2. Describe & explain current guidelines for treating CFRD, review standards of care, & unique concerns to this diagnosis.
  3. Identify symptoms of physical & musculoskeletal changes, pathology of arthropathy, & describe methods of diagnosis, evaluation & treatment.

Symposium Chair(s): Symposium Speaker(s):

S20: NT-CLIN: MRI-based Imaging Techniques

Nov 4, 2017 2:30pm ‐ Nov 4, 2017 3:55pm

Identification: S20

In this session, modern chest MRI will be introduced and detailed via a focus on techniques that have both clinical and clinical-research relevance, including short-echo imaging, such as UTE MRI, contrast and non-contrast perfusion MRI, and hyperpolarized gas as a sensitive measure of regional ventilation. Some emphasis will be placed on the sensitivity of these techniques by comparison to the clinical and research gold standards, such as PFTs, LCI, and CT. The emerging use of MRI in modern clinical practice will also be discussed.

Learning Objectives:

  1. Describe the ways that MRI can measure and depict abnormalities in pediatric and adult CF lung disease.
  2. Differentiate between structural and functional MRI measures of disease.
  3. Evaluate the sensitivity of hyperpolarized-gas MRI and how newer techniques may be used in future precision medicine.

Symposium Chair(s):
  • Daniel Weiner, M.D., Children`s Hospital of Pittsburgh
  • Jason Woods, Ph.D., Cincinnati Children s Hospital Medical Center
Symposium Speaker(s):

S21: PT&RT: PT/RT Management of Special Populations in CF

Nov 4, 2017 2:30pm ‐ Nov 4, 2017 3:55pm

Identification: S21

The individual with cystic fibrosis is challenged with a variety of health conditions that result from this genetic defect. In an effort to optimize well-being in this population, it is vital that physical and respiratory therapists are knowledgeable about the effects of these conditions. This session will consider the effects of airway clearance therapies and exercise on: hemoptysis, sleep disorders, bone health, and nutrition.

Learning Objectives:

  1. Propose best practices for physical activity and airway clearance based upon the current Pulmonary Guidelines for the treatment of hemoptysis.
  2. Identify sleep disorders associated with CF, and describe appropriate diagnostic testing and treatment for these conditions.
  3. Evaluate the effect of nutritional status and bone health on physical activity and airway clearance therapies for individuals with CF.

Symposium Chair(s): Symposium Speaker(s):

SC01: CLIN: Expanding Horizons for the Mid-Career Coordinator (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

Identification: SC01

This course is intended for new and seasoned research coordinators. It will focus on less common areas of the job and how to return to the basics to improve performance over the long term.

Learning Objectives:

  1. Demonstrate the complicated treatment regimens and lifestyle challenges faced by CF patients daily to increase understanding of the potential burdens to study participation.
  2. Discuss issues related to both short-term and long-term burnout and strategies to avoid it.
  3. Compare and contrast how what an RC learns at the beginning of their career shapes their work over time.

Short Course Speaker(s):

SC02: CLIN: Absolutely Practical CF-Gastroenterology Course (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

Identification: SC02

This course will present an overview of gastrointestinal conditions affecting patients with CF from the perspective of both pediatric and adult gastroenterology providers. Approaches to common intestinal, hepatic, pancreatic, and nutritional issues in CF will be discussed, along with strategies to best coordinate and develop partnerships between CF centers and local gastroenterologists to care for CF patients across the life spectrum.

Learning Objectives:

  1. Discuss and apply a systematic approach to the evaluation of Abdominal Pain, Constipation, and DIOS in patients with CF.
  2. Create working definitions of hepatic and pancreatic disease manifestations in CF, and address strategies for optimal nutritional monitoring and management throughout the life spectrum.
  3. Discuss colorectal cancer trends in CF, and approaches to proactive screening and surveillance in the aging CF population.

Short Course Leader(s): Short Course Speaker(s):

SC03: CLIN: The Perils of CF Pharmacotherapy: A Practical Approach to Inhaled & Systemic Drugs (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

Identification: SC03

This short course, utilizing interactive discussion and case-based format, will provide recommendations regarding pharmacokinetic/pharmacodynamic and drug-drug/disease interaction considerations of inhaled and systemic drugs for children and adults with CF. Highlights of the course include intravenous and inhaled antibiotics, CFTR modulators, drug-drug/disease interactions, and interpretation of Phase 1 & 2 clinical trials in CF.

Learning Objectives:

  1. Discuss how knowledge of PK/PD principles can be used to optimize intravenous and inhaled therapy for patients.
  2. Describe the management of interactions with CFTR modulators.
  3. Explain the need for Phase 1 & 2 trials and discuss how the results apply to current practice.

Short Course Speaker(s):

SC04: CFF: Advocating for Your Patients: Tips & Tools for Helping People With CF & Their Families (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

Identification: SC04

Patients are encountering increasingly complex insurance, financial, legal, and other issues. This course will offer tips and tools for social workers, nurses, coordinators, and others on the CF care team to help effectively advocate for patients and connect them with the resources they need. The course will also provide an overview of the changing healthcare landscape and strategies for helping patients access their care and treatments.

Learning Objectives:

  1. Describe strategies for navigating common insurance issues.
  2. Identify programs that provide financial assistance for CF medications and care.
  3. Name appropriate referrals for legal assistance and help with Social Security disability.

Short Course Speaker(s): Speaker(s):

SC05: NRS-CLIN: Pharmacological Management: Beyond the Lungs (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

Identification: SC05

This short course, Pharmacologic Management Beyond the Lungs, will provide CF clinicians with the skills and knowledge needed to prescribe advanced therapy and navigate drug interactions utilizing an interactive discussion and case-based format.

Learning Objectives:

The course will address the following therapeutic areas:

  1. Pharmacologic management of CF-related diabetes;
  2. Medical treatment of depression and anxiety
  3. Bone disease in CF;
  4. Pharmacology for reproductive health.
  5. Discuss current management of CF-related diabetes and bone disease.
  6. Review recommendations & identify challenges regarding pharmacologic treatment of anxiety and depression in CF.
  7. Describe options for managing reproductive health in adolescents and adults with CF.

Short Course Speaker(s):
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