31st Annual North American Cystic Fibrosis Conference

Nov 2, 2017 ‐ Nov 4, 2017


The North American Cystic Fibrosis Conference (NACFC) provides a collaborative and educational forum for CF professionals to help advance CF research and care. This annual meeting brings together scientists, clinicians, and caregivers from around the world to discuss and share ideas on the latest advances in CF research, care, and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.


Sessions

W28: NRS: Successful Integration of Complimentary Therapies in Care

Nov 4, 2017 10:30am ‐ Nov 4, 2017 11:50am

Identification: W28

This workshop will first discuss aspects of Complimentary and Alternative Therapies (CAM) in CF. Topics include understanding prevalence of CAM use in CF patients; reviewing Mind-Body Therapies available in CF; successful implantation of Integrated Health Coaching; partnering with patients on CAM and opening communication within care centers; utilizing Mindfulness Training to reduce CF care center stress

Learning Objectives:

  1. Describe current CAM practices and potential benefits amongst CF patients.
  2. Describe ways to improve communication within CF Care Centers and patients/families regarding CAM use.
  3. Incorporate mindfulness techniques into personal practice to reduce stress and improve well-being.

Workshop Chair(s): Workshop Speaker(s):

W29: NT: Toward the Goal of a One-Time Cure: Challenges & Opportunities

Nov 4, 2017 10:30am ‐ Nov 4, 2017 11:50am

Identification: W29

Gene therapy provides the opportunity to cure all those affected by cystic fibrosis (CF), but this approach has been met with several challenges preventing its clinical success. The goal of this workshop is to address the current barriers to effective treatment of CF using gene therapy and introduce methods to overcome them using state-of-the art genetic and cell-based therapeutic approaches for CF.

Learning Objectives:

  1. Describe therapeutic approaches with the potential to provide long-lasting benefit in the treatment of cystic fibrosis.
  2. Identify the challenges remaining in achieving an effective one-time CF therapy using genetic and cell-based approaches.
  3. Explain the latest advances in genetic and cell-based approaches in the treatment of CF.

Workshop Chair(s):
  • Eric Alton, M.A., M.D., FRCP, F.Med.Sci., Professor of Gene Therapy & Respiratory Medicine/Honorary Consultant Physician, National Heart & Lung Institute
  • Gregg Duncan, Ph.D., University of Maryland
Workshop Speaker(s):

W30: SW/PSYCH: Communication in a Digital World: The Utilization of Technology to Improve Outcomes in CF

Nov 4, 2017 10:30am ‐ Nov 4, 2017 11:50am

Identification: W30

This workshop will focus on the numerous and exciting ways that technology is being leveraged to facilitate communication and improve outcomes in the CF community. Speakers will discuss their efforts in designing and implementing telehealth and e-health interventions to improve mental health, quality of life, adherence, and health outcomes in youth and adults with CF.

Learning Objectives:

  1. Describe a variety of telehealth and e-health interventions and their efficacy for improving outcomes in individuals with CF.
  2. Discuss the process for development and implementation of such programs.
  3. Examine common challenges associated with implementing technological interventions and future directions for interventions and research.

Workshop Chair(s): Workshop Speaker(s):
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