32nd Annual North American Cystic Fibrosis Conference

Oct 18, 2018 ‐ Oct 20, 2018



Sessions

S18--CLIN: Transplant & Advanced Lung Disease

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm

The care of individuals with CF and advanced lung disease can be challenging, especially as one considers the transition to lung transplantation. This session will give an overview of the care of patients with advanced lung disease, the timing of referral and listing for lung transplantation, the transition to transplant and palliative care.

Learning Objectives:

  • Identify important indications for lung transplant referral and describe comorbid conditions that require specific treatment among patients with reduced lung function.
  • Discuss the known barriers and facilitators to a smooth transition to lung transplant with a focus on lessons learned through the CF Lung Transplant LLC.
  • Summarize the available evidence for palliative care in CF and describe practices that can be incorporated into the care of patients with advanced lung disease.

Symposium Chair(s): Symposium Speaker(s):

S19--CLIN-NRS: *Pain Management in CF

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm

Pain is increasingly recognized as a common and clinically important symptom in people with CF. Some estimate that up to 80% of adults with CF experience frequent pain that is at least moderately severe. However, there is poor understanding about what constitutes 'CF pain' and even less agreement on appropriate and effective treatment strategies. This session will feature four speakers who will address the following topics: 1. Parsing CF pain into nociceptive, neuropathic, and centralized pain with appropriate treatment targeting. 2. Managing misuse, abuse, and addiction to opioids. 3. Cognitive behavioral therapy for chronic pain. 4. Physical therapy and exercise therapy for pain management.

Learning Objectives:

  • Explain the different types of pain common in people with CF and understand how this shapes treatment.
  • Define strategies for preventing and managing misuse and addiction to opioids.
  • Discuss how cognitive behavioral therapy, physical therapy and exercise therapy can be utilized for CF pain management.

Symposium Chair(s): Symposium Speaker(s):

S20--CLIN-NTR: Assessment of Function in GI, Endocrine, & Nutrition

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm

Assessment of clinical measures of disease are essential to both research and clinical care. Non-traditional aspects of CF, and the determination of health in that area, may be unfamiliar with providers and researchers. This symposium will provide an understanding to promote study and interpretation of these additional comorbidities.

Learning Objectives:

  • Describe the importance of body composition in clinical care and research.
  • Identify with measurements of bone health and metabolism in clinical research.
  • Discuss assessments of fecal/serum markers of intestinal inflammation and research & clinical care assessments of constipation in CF.

Symposium Chair(s): Symposium Speaker(s):

S21--INF/MIC: Controversies in Airway Infection

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm

This session will involve two Pro/Con debates involving issues in airway infection in cystic fibrosis. The first talk will debate whether aggressive antimicrobial management of infants and young children is good or bad. The second debate will be a discussion on whether anaerobes are good or bad actors in the airways of cystic fibrosis individuals.

Learning Objectives:

  • Define the rationale behind aggressive early treatment of young children, and the reasons that treatment may not be beneficial or harmful.
  • Define what is known about the role of anaerobic bacteria in cystic fibrosis in the progression of lung disease and exacerbation.
  • Review treatment options for chronic therapy as well as treatment for pulmonary exacerbations.

Symposium Chair(s): Symposium Speaker(s):

S22--NT-APP&D: Resolution of Inflammation in CF Airways: CFTR & Beyond

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm

Airway disease remains the leading cause of morbidity and mortality in individuals with cystic fibrosis. The absence of CFTR leads to multiple changes in airways surface secretions and host defenses that are associated with severe and sustained airway inflammation. Correction of CFTR function may decrease part of the inflammatory process and prevent tissue destruction. However inflammation independent of CFTR is likely to persist. This symposium will address both CFTR -dependent and -independent mechanisms of resolving inflammation.

Learning Objectives:

  • Describe the impact of CFTR modulators on the host inflammatory response in cystic fibrosis.
  • Define the roles of macrophages and pro-resolving mediators in the CF airway inflammatory response.
  • Describe the results of a recently completed clinical trial of an anti-inflammatory drug in cystic fibrosis.

Symposium Chair(s): Symposium Speaker(s):

S23--PT&RT: Literature Review of Hot Topics in RT & PT Care

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm

This symposium is planned to highlight current literature as it pertains to PT and RT practice across the care spectrum from inpatient to outpatient care for adults and children with cystic fibrosis. Our physical therapy and exercise science session presenters will overview current evidence based practice around exercise prescription and musculoskeletal management. Our respiratory therapy session presenters will highlight the most up to date literature pertaining to airway clearance and pulmonary diagnostics. Collaborative care within the physical and respiratory care teams will be discussed as it pertains to each of these subjects.

Learning Objectives:

  • Demonstrate an understanding of current literature as it relates to respiratory care for airway clearance devices and pulmonary diagnostics.
  • Apply knowledge of current evidence surrounding exercise and musculoskeletal management.
  • Recall learning back to their care centers ideas for collaborative care between respiratory and physical therapy team members as it relates to current literature.

Symposium Chair(s): Symposium Speaker(s):

S24--SW/PSYCH-NRS-CLIN: *'Adulting' With CF

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm

As life expectancy increases among CF patients, the model of care is expanding to include more focus on adult responsibilities, co-morbidities, and challenges of daily living and quality of life. There are many unique and challenging concerns for aging CF patients and the families and communities that support them. This symposium will offer a wide range of interesting topics on 'adulting with CF' to enhance understanding of adult issues and engage persons with CF and their families more fully in care. Four expert speakers will discuss: disclosure related to CF diagnosis, sexual/reproductive health for women with CF, career and employment, and the CF spouse's journey.

Learning Objectives:

  • Identify that adult CF patients and their spouses have multiple challenges and stressors-- balancing lifestyle, career, health, and family.
  • Identify important care needs for females with CF from adolescence through adulthood, specifically related to sexual and reproductive health.
  • Define the complexities of disclosure of CF diagnosis at all stages of disease.

Symposium Chair(s): Symposium Speaker(s):

SC01--CLIN: Fundamentals of Quality Improvement

Oct 17, 2018 3:30pm ‐ Oct 17, 2018 7:30pm

During this interactive session on the fundamentals of quality improvement, participants will be placed into artificial care teams in order to work through the steps of the model for improvement. These artificial care teams will work to improve the care processes at a fictional CF care center at which patient outcomes have been declining. The participants will then apply lessons learned to a process for their own CF center.

Learning Objectives:

  • Develop a process and an outcome aim statement and run chart for each.
  • Create a process map with change ideas and rapid cycles of change.
  • Prepare a description of a process improvement for your own center.

Short Course Leader(s):

SC02--CLIN: Expanding Responsibilities for the Mid-Level Coordinator

Oct 17, 2018 3:30pm ‐ Oct 17, 2018 7:30pm

As research coordinators gain experience, their scope of responsibility and opportunity will grow. Research teams will look to them to find solutions to challenging issues and foster improvement of and within the group. This session will address the unique role of the mid-career coordinator and offer material to enhance their knowledge base, improve effectiveness and efficiency of the individual and their groups, and creatively rise to challenges for their teams.

Learning Objectives:

  • Evaluate ways to enhance processes for a range of study activities, including regulatory and IRB, budgeting, and managing investigator-initiated studies.
  • Apply in-depth education about CF basic science and cutting edge outcome measures, to improve understanding of protocols and be able to speak with patients and families on a wider range of topics.
  • Examine ways to enhance work flow and environment, both as individuals and with research teams.

Short Course Leader(s): Short Course Speaker(s):

SC03--CLIN: Partnership Enhancement Program: Building Fundamental Communication Skills

Oct 17, 2018 3:30pm ‐ Oct 17, 2018 7:30pm

Establishing strong, trusting relationships is a fundamental aspect of partnering with individuals with CF and families. Participants in this course will be introduced to three practical, evidence-based skillsets: (1) Building deeper levels of trust, including the ability to explore the patient's goals and perspectives; (2) Creating more open dialogue, by asking open-ended questions, listening actively, and responding with empathy; and (3) Developing stronger partnerships in the care process through goal-setting conversations. The course consists of short presentations and small-group breakout sessions led by trained facilitators. Participants will strengthen their communication competencies by receiving individualized feedback as they apply new skills and practice effective communication approaches. Participants will create a plan for implementing fundamental, relationship-centered skills upon returning to their clinical environments.

Learning Objectives:

  • Describe the components and evidence supporting communication skills, with links to information specific to the CF care experience.
  • Identify strategies for enhanced communication between clinical care teams and individuals with CF, with an emphasis on building trust and setting goals to empower individuals with CF and their families to become active partners in care.
  • Practice communication skills and receive guided feedback from small group facilitators and create a simple plan to strengthen communication in your own clinical setting.

Short Course Speaker(s):
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