This session will feature presentations about recent quality improvement projects related to clinical research. Topics include improving the culture of research, patient barriers to research participation, and using TDN site metrics to set goals for improvement.
Identify at least one quality improvement project that you can implement at your site over the next year.
Explain the importance of building a culture of research and the benefit it has for your research program and patients.
Describe how TDN metrics can be used as a tool to help drive quality improvement at your site.
A leading cause of morbidity and mortality in CF patient populations is chronic respiratory infection. This workshop will present new research on pathogenesis of infections in CF, with a focus on bacterial pathogens in the CF respiratory tract. Abstracts presented will highlight bacterial adaptations to the host environment that promote enhanced virulence and interspecies interactions that influence pathogenesis in the airways.
Discuss the mechanisms utilized by emerging and traditional CF pathogens to establish chronic respiratory disease.
Describe how adaptation to the CF airway environment leads to enhanced virulence of diverse bacterial pathogens.
Identify interactions occurring between bacterial species in the polymicrobial environment of the CF airways that influence pathogenesis of CF respiratory disease.
The session will highlight strategies for assisting patients and families on a successful CF Journey. During the workshop, we will present ideas of what patients and families need throughout their lifespan to be successful across their lifespan.
Identify and describe the elements of a successful CF journey across the life span.
Explain and summarize the importance of adherence in the CF journey.
Discuss how to communicate and integrate support with CF patients and families.
In this session, recent evidence will be presented on current debatable topics in the areas of exercise, airway clearance and inhaled medications. Specifically, discussions pertaining to optimal modalities and methods for airway clearance will ensue along with the potential utility of field tests to quantify exercise capacity in the clinic. Attendees should be prepared to interact with the speakers and audience members to debate the pros and cons of the presented topics.
Formulate a rationale for a sequence of respiratory treatments in obtaining desired clinical outcomes and patient adherence.
Discuss concerns and benefits of mobile high-frequency chest wall oscillation devices as compared to their standard counterparts.
Explain the potential role of exercise in facilitating airway clearance and distinguish between the information gained from formal aerobic exercise tests compared to clinical field tests.
This workshop will highlight common transitions across the lifespan (school/educational planning, implementation of palliative care, and diagnosis of CFRD) and cross-cutting strategies that could be used in the context of disease transitions when providing care for patients and families (importance of shared decision making and the effectiveness of ACT in reducing anxiety and depressive symptoms).
Identify common transitions and challenges that patients and families face across the lifespan.
Examine emotional responses to disease transitions.
Discuss interventions and strategies for supporting patients and families in navigating and managing disease transitions.
Note: Speaker Dio Kavalieratos' presentation was not recorded at her request.
This session will present some of the latest data highlighting the unique considerations of lung transplant in the context of cystic fibrosis. The session will explore more precise ways of assessing who is at risk of needing a transplant, ways to optimize decision-making for those considering transplant, and what cystic fibrosis lung transplant recipients can expect after transplant. This session is designed to help CF care teams increase understanding of significant issues in lung transplant and better care for those preparing for or living life after lung transplantation.
Analyze new methods for assessing potential need for lung transplantation.
Summarize how systemic manifestations of cystic fibrosis affect transplant candidacy and outcomes.
Define how lung transplantation impacts quality of life in cystic fibrosis.