29th Annual North American Cystic Fibrosis Conference

Oct 7, 2015 ‐ Oct 10, 2015



The synchronized sessions from the 2015 NACFC are NOW AVAILABLE!

Full NACFC registrants have complimentary access to the recordings of the 2015 NACFC Plenary sessions, Symposia and Workshops.

Short Course presentations held on Wednesday, October 7, are also available for an additional fee. To purchase access to the Short Course presentations, click here.


Sessions

W16: CLIN-INF/MIC-NTR: CF Newborn Screening

Oct 9, 2015 2:00pm ‐ Oct 9, 2015 3:45pm

Early studies helped us to understand the benefit of early diagnosis through newborn screening for CF. This session will help further our knowledge & understand what happens to these patients after the newborn screen is positive.

Educational Objectives:

  1. Compare differences in outcomes for patients diagnosed early versus late in the era of newborn screening.
  2. Identify the characteristics in early life for infants, such as nutritional status, including pancreatic supplementation practices & hematologic & chemical laboratory outcomes.
  3. Describe the outcomes for patients with specifc special outcomes, such as CRMS & polyT/TG repeats.

Speaker(s):
Standard: $49.99

W17: CLIN: Gastroenterology/Liver/Pancreas

Oct 9, 2015 2:00pm ‐ Oct 9, 2015 3:45pm

A focused discussion of emerging evidence for improving care and clinical outcomes in adult and pediatric patients with gastrointestinal/hepatic/pancreatic (GI) sequelae of Cystic Fibrosis (CF), particularly regarding concerted treatment and screening initiatives that will come into play for more CF patients with progressively rising life expectancy outcomes.

Educational Objectives: 

  1. Evaluate available screening strategies for evolving CF GI diseases.
  2. Discuss how structured Quality Improvement processes can strengthen the patient/provider partnership in CF Nutrition.
  3. Examine strategies to optimize pancreatic enzyme supplementation and efficacy in CF patients.
  4. Consider potential biomarkers and therapeutic pathways for future treatment of CF GI diseases. 

Speaker(s):
Standard: $49.99

*** W18: NRS: Innovative Strategies in Inpatient & Outpatient Care Management

Oct 9, 2015 2:00pm ‐ Oct 9, 2015 3:45pm

A review of various 'hot topics' in the CF centers across the nation. Improving care in both settings with quality improvement, education & technology. Includes projects with patients, families & staff of both the inpatient & outpatient setting.

Educational Objectives:

  1. Discuss some options for using social media & technology.
  2. Review tools for evaluating pulmonary exacerbations.
  3. Describe & apply education for CF providers.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** W19: SW/PSYCH-NRS: Working Together: Pediatric & Adult Centers Collaborating

Oct 9, 2015 2:00pm ‐ Oct 9, 2015 3:45pm

Adult & pediatric CF teams across the country work hard to ensure that young adults are prepared for a transition from pediatric to adult care. Presenters will share strategies & tools for improving communication between pediatric & adult teams & will demonstrate how collaboration between teams, patients & families leads to successful entrance into adult CF care.

Educational Objectives: 

  1. Describe the value of collaboration between pediatric & adult CF care teams.
  2. Identify tools that facilitate communication & partnership between pediatric & adult providers.
  3. Review strategies to prepare young adults to successfully transition from pediatric to adult CF care. 
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** W20: PT & RT: Aerosol Therapy: How Are We Delivering Inhaled Medications in 2015: Past, Present & Future

Oct 9, 2015 2:00pm ‐ Oct 9, 2015 3:45pm

Physicians must choose from an ever-expanding arsenal of therapies intended to maintain lung health for patients with CF. There has been extensive research not only in the development of these medications, but also in their improved delivery. This workshop will focus on the safety & efficacy, as well as patient adherence in the evolving era of aerosolized medications.

Educational Objectives:

  1. Describe strategies for choosing nebulizers for the inpatient setting & minimizing immediate side effects of aerosolized therapies.
  2. Discuss the long-term safety & efficacy of Tobramycin Inhalation Powder (TIPtm) & adherence to TIP(tm) versus Tobramycin Inhalation Solution.
  3. Identify barriers to medication adherence & discuss the changes to adherence after using ivacaftor. 
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** P3: There Is No Health Without Mental Health

Oct 10, 2015 9:00am ‐ Oct 10, 2015 10:00am

This session focuses on the prevalence of depression & anxiety in both individuals with CF & caregivers. The session focuses on the published results from the TIDES study, the International Guidelines on Mental Health in CF & on implementation & dissemination of these guidelines.

Educational Objectives:

  1. Summarize the prevalence of depressive & anxious symptoms among individuals with CF & parent caregivers.
  2. Identify how psychological symptoms negatively affect disease management, including adherence, clinic attendance, health outcomes & quality of life.
  3. Identify evidence-based intervention strategies that address symptoms of depression & anxiety.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

W21: CFTR: Understanding & Fixing Mutant CFTR

Oct 10, 2015 10:30am ‐ Oct 10, 2015 12:15pm

This workshop is designed to review novel mechanisms regulating the cell surface density of CFTR channels, describe therapeutic advances to correct the mutant CFTR function & discuss personalized approach for CF treatment.

Educational Objectives:

  1. Review novel mechanisms regulating the cell surface density of CFTR channels.
  2. Describe therapeutic advances to correct the mutant CFTR function.
  3. Discuss personalized approach for CF treatment.

Speaker(s):
Standard: $49.99

W22: APP&D: CF Airway Inflammation, Biomarkers & Therapeutic Targets

Oct 10, 2015 10:30am ‐ Oct 10, 2015 12:15pm

In this session, we will discuss the role of various patholobiologic contributors to inflammation in the CF airway, identify potential biomarkers for assessing this inflammation & review the role of therapeutic agents in combating inflammation in CF.

Educational Objectives:

  1. Identify various pathobiologic contributors to airway inflammation in CF.
  2. Analyze appropriate biomarkers of inflammation in CF.
  3. Evaluate the anti-infammatory efficacy of a CFTR modulator.

Speaker(s):
Standard: $49.99

W23: APP&D: Non-CFTR Ion Transport Targets for CF

Oct 10, 2015 10:30am ‐ Oct 10, 2015 12:15pm

CF airways are dehydrated due to lack of chloride & bicarbonate secretion into the lumen; modulation of CFTR activity can alter ion concentration on the airway surface. In addition to CFTR, there are other potential channel targets for modulation of ion secretion by the epithelium. This session will cover several of these other ion channels & how their activity may be modulated.

Educational Objectives:

  1. Explain why non-CFTR ion channels represent a potential target for CF therapy.
  2. Describe how inhibition of ENaC can be achieved at the molecular level.
  3. Compare the molecular composition & functions of different non-CFTR epithelial anion channels.

Speaker(s):
Standard: $49.99

W24: NT: New Therapy & Outcomes Poster Discussion

Oct 10, 2015 10:30am ‐ Oct 10, 2015 12:15pm

This session will address new disease-related outcomes & novel therapeutic approaches in the treatment of patients with CF.

Educational Objectives:

  1. Describe new disease-related outcome measures & potential application in patients with CF.
  2. Assess compounds currently in early phase studies as new potential therapeutics for CF.
  3. Evaluate potential opportunities & barriers to the advent of new outcome measures & therapeutics in the care of CF patients.

Speaker(s):
Standard: $49.99
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