29th Annual North American Cystic Fibrosis Conference

Oct 7, 2015 ‐ Oct 10, 2015



The synchronized sessions from the 2015 NACFC are NOW AVAILABLE!

Full NACFC registrants have complimentary access to the recordings of the 2015 NACFC Plenary sessions, Symposia and Workshops.

Short Course presentations held on Wednesday, October 7, are also available for an additional fee. To purchase access to the Short Course presentations, click here.


Sessions

S16: GMS: How Do CF Genetics & Clinical Practice Interface?

Oct 10, 2015 2:30pm ‐ Oct 10, 2015 4:20pm

Speakers in this session will describe the characterization of genetic variants at the CFTR locus & discuss the impact of genetic variants in other genes (genetic modifiers) on CF. We will discuss ways in which CFTR & genetic modifier information can be incorporated into clinical management at the time of CF diagnosis & through childhood & adulthood.

Educational Objectives:

  1. Describe how to best annotate whether a mutation in CFTR causes CF or is a neutral variant.
  2. Identify how & which genes other than CFTR can affect CF & its complications.
  3. Discuss what genetic information about CFTR & other genes can add to the clinical care for people with CF at the time of CF diagnosis & throughout childhood & adulthood.

Speaker(s):
Standard: $49.99

S17: NT: Strategies for Rare CFTR Mutations

Oct 10, 2015 2:30pm ‐ Oct 10, 2015 4:20pm

Among 80,000 CF patients worldwide, almost 2,000 CFTR variants have been reported. However, the molecular mechanisms that underlie the physiologic consequences for the majority of these rare variants are unknown. This session will detail our current understandings & approaches to restoring the function of these rare, non-F508del CFTR variants.

Educational Objectives:

  1. Describe how rare mutations cause CFTR dysfunction using genetic & cell biological approaches.
  2. Describe the approach to developing novel, mechanism based small molecule therapeutic options to treat patients with rare mutations in a personalized fashion.
  3. Describe the uses of induced pluripotent stem cells & gene editing strategies in targeted correction & restoration of CFTR function.

Speaker(s):
Standard: $49.99

S18: INF/MIC: Microbial Interactions in the CF Airways

Oct 10, 2015 2:30pm ‐ Oct 10, 2015 4:20pm

This session will focus on describing the complex interactions between host immune cells & microbial pathogens in the lungs of patients with CF.

Educational Objectives:

  1. Summarize data regarding the complexity of microbial pathogens in the CF lung.
  2. Discuss host factors that impact P. aeruginosa infection in CF.
  3. Summarize recent findings on the role of respiratory viral infections on disease progression in CF.

Speaker(s):
Standard: $49.99

*** S19: CLIN: Update on Lung Transplantation in CF

Oct 10, 2015 2:30pm ‐ Oct 10, 2015 4:20pm

This session will address lung transplant access for patients with Medicaid, a contrast between US & Canadian policies, common complications after transplant, issues of survival prediction in patients with end-stage CF & effect of infection on transplantation outcomes. A lung transplant recipient also will share perspectives about quality of life & what to expect with transplantation.

Educational Objectives:

  1. Describe current lung allocation in the United States & issues with access to the waiting list.  
  2. List common complications in CF patients after lung transplantation.  
  3. Discuss issues with difficult to manage infections in patients with CF undergoing lung transplantation.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

S20: CLIN: Caroline McPherson Symposium: Pro/Con Debates in Early CF Lung Disease (

Oct 10, 2015 2:30pm ‐ Oct 10, 2015 4:20pm

Monitoring & aggressive treatment of lung disease during early childhood are critical to improving outcomes in CF. Yet, clear & convincing evidence-based data to guide optimal clinical care in young children with CF are lacking. This symposium will utilize a pro-con style debate to address three controversial topics in early CF lung disease (<6 years of age).

Educational Objectives:

  1. Describe the evidence for & against the use of surveillance lung function testing to assess & monitor early CF lung disease.
  2. Identify the risks & benefits of surveillance bronchoscopy to assess early CF lung disease.
  3. Discuss the risks, benefits & evidence of early aggressive Staphylococcus aureus prevention & treatment in infants & young children with CF.

Speaker(s):
Standard: $49.99

*** S21: SW/PSYCH: The Impact of CF on Relationships Throughout the Lifespan

Oct 10, 2015 2:30pm ‐ Oct 10, 2015 4:20pm

How CF affects the development & quality of non-parental relationships & how these relationships subsequently affect the well-being of people with CF is not often considered by healthcare providers. This session will provide data on the impact of relationships to illustrate their importance & identify ways to support these critical relationships. 

Educational Objectives: 

  1. Compare & contrast the manner in which a CF diagnosis can affect relationships, including familial, peer, collegial & romantic relationships.
  2. Describe the influence of personal relationships on the physical & psychosocial well-being of people with CF.
  3. Evaluate strategies the CF care team can use to support the attainment of health & rewarding relationships.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** CG23: SW/PSYCH- Bridging the Gap: How to Become The Social Worker Your Patient Thinks You Should Be

Oct 10, 2015 4:30pm ‐ Oct 10, 2015 6:30pm

This session will use survey results, presentations, film & a panel of family members/people with CF to provide participants with effective strategies for engaging people with CF & their families.

Educational Objectives: 

  1. Apply strategies for engaging people with CF & their families.
  2. Identify three methods for bridging the gap between social work & family views.
  3. Describe three ways to learn more about families, (e.g., enhanced listening skills, use of videos). 
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99
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