The synchronized sessions from the 2016 NACFC are NOW AVAILABLE!
Full NACFC registrants have complimentary access to the recordings of the 2016 NACFC Plenary sessions, Symposia and Workshops.
Short Course presentations held on Wednesday, October 26, are also available for an additional fee. To purchase access to the Short Course presentations, click here
Preview Available
This
course is designed for new RCs and experienced RCs transitioning into cystic
fibrosis clinical trial research. It will provide a CF-specific overview of
clinical research at the site with experts in the field presenting material
from both regulatory and practical perspectives. Educational Objectives:
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Preview Available
This short course, utilizing interactive discussion and case-based format, will provide in-depth reviews and recommendations regarding pharmacologic management of children and adults with CF. Highlights of the course include antibiotics for treatment of common CF pathogens in outpatient and inpatient settings, management of challenging and emerging pathogens, considerations in the use of chronic CF medications, and medications for pancreatic insufficiency and GI complications in CF.
Preview Available
Guidelines
from the CF Foundation and European CF Society recommend systematic
prevention, identification, and treatment of depression and anxiety. This
course will teach practitioners what they need to know about using
psychological and psychopharmacological interventions in individuals with
CF. Educational Objectives:
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*** This session was streamed live during the 2016 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/16
Leader(s):Preview Available
This
training is intended to enhance patient-centered communication skills. It will discuss comprehensive assessment
of aspects of the patient that are relevant to successfully engaging a
patient in treatment including patient beliefs, skills, knowledge, etc. It will emphasize the
elicit-provide-elicit mode of patient education. The second half of the training will
involve a review of Motivational Interviewing and will provide in-session
practice of essential Motivational Interviewing skills and interventions. Educational Objectives:
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Preview Available
We all
know what happens when we tell a strong-willed kid what to do: resistance,
rebellion, and resentment. Rather than coercion, help parents gain
cooperation with medication, food and more. The tools you learn will also
help you with patients in the clinical setting. Educational Objectives:
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Preview Available
This course will focus on advanced concepts in the nutritional management of individuals with cystic fibrosis, including the rapid growth years of infancy, early childhood, and adolescence, pregnancy, transplant, CF-related diabetes and impaired glucose tolerance, evaluation and treatment of poor growth through enteral and parental nutrition and appetite stimulation, optimization of digestion and absorption, and interpretation of lab values and treatment of subsequent nutritional deficiencies. Practical knowledge gained from this course will help improve the quality of nutrition care delivered to individuals with CF. Educational Objectives:
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Preview Available
This course will offer a highly interactive introduction to the improvement fundamentals for members of the Virtual Improvement Program for Fundamentals. The CFF improvement fundamentals is based on the rich history of successful improvement & will be followed up by 8 months of web-based learning. Participants will receive pre-reading before this session.
Those who attend this course will understand the basic physiological responses to exercise in the major organ systems in both health and disease. This basic knowledge will form the foundational understanding that will allow appropriate implementation and interpretation of various exercise testing protocols. Attendees will then gain basic skills in performing and interpreting exercise tests and apply this knowledge in effective activity counseling that will lead to better health outcomes for patients with CF.
Preview Available
Preview Available
This session initially focuses on establishing a short coming of the recently approved small molecule modulators VX-809 and VX-770. These molecules fail to restore the defective membrane distribution of F508del-CFTR. Then, the session emphasizes the need for finding new approaches to find new and more effective therapies by targeting different aspects of CFTR trafficking and recycling. Finally, the session ends with showing that the mouse model is not effective in reflecting drug efficacy in human subjects.