30th Annual North American Cystic Fibrosis Conference

Oct 26, 2016 ‐ Oct 29, 2016


The synchronized sessions from the 2016 NACFC are NOW AVAILABLE!

Full NACFC registrants have complimentary access to the recordings of the 2016 NACFC Plenary sessions, Symposia and Workshops.

Short Course presentations held on Wednesday, October 26, are also available for an additional fee. To purchase access to the Short Course presentations, click here



Sessions

SC01: CLIN: Nuts & Bolts for the New Research Coordinator

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

This course is designed for new RCs and experienced RCs transitioning into cystic fibrosis clinical trial research. It will provide a CF-specific overview of clinical research at the site with experts in the field presenting material from both regulatory and practical perspectives.

Educational Objectives:
  • Interpret an overarching and comprehensive perspective of research coordination.
  • Identify the key team members and what is expected of the RC from each team member.
  • Discuss how does the RC meet each team member's expectations.

Chair(s):
  • Kate A. Hilliard, B.A., CCRC, Director, Clinical Research Operations, Rainbow Babies & Children's Hospital
  • Colleen E. Dunn, B.A., Translational Research Manager
Speaker(s):
Standard: $49.99

SC02: CLIN-NRS: Walking the Therapeutic Tight Rope

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

This short course, utilizing interactive discussion and case-based format, will provide in-depth reviews and recommendations regarding pharmacologic management of children and adults with CF. Highlights of the course include antibiotics for treatment of common CF pathogens in outpatient and inpatient settings, management of challenging and emerging pathogens, considerations in the use of chronic CF medications, and medications for pancreatic insufficiency and GI complications in CF.

Educational Objectives:
  • Describe therapies aimed at treating pancreatic insufficiency and other GI complications in CF.
  • Review recommendations & identify challenges regarding chronic CF therapies.
  • Discuss current management of challenging and emerging pathogens in CF and explain antibiotic strategies used to treat common CF pathogens in both inpatient and outpatient settings.

Chair(s): Speaker(s):
Standard: $49.99

SC04: CLIN-SW/PSYCH: Depression & Anxiety Treatment in CF: Therapy, Medications & Preventative Strategies

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

Guidelines from the CF Foundation and European CF Society recommend systematic prevention, identification, and treatment of depression and anxiety. This course will teach practitioners what they need to know about using psychological and psychopharmacological interventions in individuals with CF.

Educational Objectives:
  • Manage patient outcomes through the dissemination and application of preventative strategies for anxiety and depression.
  • Relate or enhance participant's clinical skill set and knowledge of Cognitive Behavioral Therapy (CBT).
  • Apply psychotherapy and pharmacotherapy interventions alone and in combination to develop treatment plans for individuals with CF and anxiety and/or depression.

*** This session was streamed live during the 2016 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/16

Leader(s): Speaker(s):
Standard: $49.99

SC03: CLIN-SW/PSYCH: Patient-centered Communication Strategies to Enhance Partnerships

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

This training is intended to enhance patient-centered communication skills. It will discuss comprehensive assessment of aspects of the patient that are relevant to successfully engaging a patient in treatment including patient beliefs, skills, knowledge, etc. It will emphasize the elicit-provide-elicit mode of patient education. The second half of the training will involve a review of Motivational Interviewing and will provide in-session practice of essential Motivational Interviewing skills and interventions.

Educational Objectives:
  • Review methods to enhance patient-centered communication skills.
  • Practice specific techniques to improve communication and enhance motivation (e.g. using the Elicit-Provide-Elicit approach, empathic listening, decisional balance.
  • Apply overview of motivational interviewing (MI).

Speaker(s):
Standard: $49.99

SC05: SW/PSYCH: NO More NO: Helping Parents Gain Cooperation With Self Care & More

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

We all know what happens when we tell a strong-willed kid what to do: resistance, rebellion, and resentment. Rather than coercion, help parents gain cooperation with medication, food and more. The tools you learn will also help you with patients in the clinical setting.

Educational Objectives:
  • Explain the theoretical basis for developmentally appropriate strategies that promote adherence to prescribed health care.
  • Apply and teach specific strengths-based, positive strategies for gaining cooperation with medical requirements.
  • Identify opportunities to teach and discuss parenting skills with care givers in daily clinical practice.

Speaker(s):
Standard: $49.99

SC06: NTR: Advanced NutritionSC06: NTR: Advanced Nutrition

Preview Available

SC06: NTR: Advanced Nutrition

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

This course will focus on advanced concepts in the nutritional management of individuals with cystic fibrosis, including the rapid growth years of infancy, early childhood, and adolescence, pregnancy, transplant, CF-related diabetes and impaired glucose tolerance, evaluation and treatment of poor growth through enteral and parental nutrition and appetite stimulation, optimization of digestion and absorption, and interpretation of lab values and treatment of subsequent nutritional deficiencies. Practical knowledge gained from this course will help improve the quality of nutrition care delivered to individuals with CF.

Educational Objectives:
  • Summarize the nutritional challenges related to infancy/childhood/adolescence, pregnancy, transplant, and gastrointestinal health in individuals with CF.
  • Identify potential barriers and strategies to improve growth in CF.
  • Discuss the management of CF-related diabetes and nutritional deficiencies.

Speaker(s):
  • Lisa Mannik, M.Sc., R.D., CDE, Registered Dietitian, St. Michael's Hospital
  • Erin Seffrood, MS, RD, CSP, CD, Pediatric Clinical Nutritionist, American Family Children's Hospital
Standard: $49.99

SPQI: Introduction to CF Quality Improvement: The Virtual Improvement Program-Fundamentals ‘VIP-F’ Launch

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

This course will offer a highly interactive introduction to the improvement fundamentals for members of the Virtual Improvement Program for Fundamentals. The CFF improvement fundamentals is based on the rich history of successful improvement & will be followed up by 8 months of web-based learning. Participants will receive pre-reading before this session.

Educational Objectives:
  • Apply introduction to quality improvement through the VIP-F2 program.
  • Define your CF program, CF registry data, and 5P data to inform improvement.
  • Assemble with your coach.

Speaker(s):
Standard: $49.99

SC07: PT & RT: Comprehensive Exercise Testing & Prescription Implementation

Oct 26, 2016 3:30pm ‐ Oct 26, 2016 7:30pm

Those who attend this course will understand the basic physiological responses to exercise in the major organ systems in both health and disease. This basic knowledge will form the foundational understanding that will allow appropriate implementation and interpretation of various exercise testing protocols. Attendees will then gain basic skills in performing and interpreting exercise tests and apply this knowledge in effective activity counseling that will lead to better health outcomes for patients with CF.

Educational Objectives:
  • Explain the physiological basis for performing exercise tests.
  • Interpret exercise tests.
  • Formulate and implement activity recommendations based on exercise test results.

Speaker(s):
Standard: $49.99

W01: APP&D: Bench to Bedside in CF Inflammation

Oct 27, 2016 9:45am ‐ Oct 27, 2016 11:05am

This session will focus on recent discoveries in the field of inflammation and host-pathogen response in cystic fibrosis. Researchers will present results from studies including several different types of leukocytes, effects of CFTR impairment and modulator drugs, and promising candidate biomarkers and therapeutics.

Educational Objectives:
  • Examine the role of macrophage variability in the degree of regional airway damage within the CF lung.
  • Assess the impact of CFTR modulator drugs on leukocyte function.
  • Illustrate altered lymphocyte function in CF patients during acute pulmonary exacerbation of lung disease.

Chair(s): Speaker(s):
Standard: $49.99

W02: CFTR: CFTR 2016W02: CFTR: CFTR 2016

Preview Available

W02: CFTR: CFTR 2016

Oct 27, 2016 9:45am ‐ Oct 27, 2016 11:05am

This session initially focuses on establishing a short coming of the recently approved small molecule modulators VX-809 and VX-770. These molecules fail to restore the defective membrane distribution of F508del-CFTR. Then, the session emphasizes the need for finding new approaches to find new and more effective therapies by targeting different aspects of CFTR trafficking and recycling. Finally, the session ends with showing that the mouse model is not effective in reflecting drug efficacy in human subjects.

Educational Objectives:
  • Demonstrate the lack of effectiveness of VX-809 and VX-770 in the restoration of the defective membrane distribution of F508del-CFTR.
  • Create the need for the identification of new potential therapies targeting different aspects of mutant CFTR trafficking and internalization.
  • Create a difference in the response of mouse and human models to newly developed treatments when defining drug efficacy.

Chair(s): Speaker(s):
Standard: $49.99