Exercise capacity has been shown to predict patient outcomes, independent of lung function. Routine exercise testing is recommended, not only to evaluate exercise tolerance but to obtain the most effective exercise prescription for each individual patient. This session will expose you to the ins & outs of conducting an exercise test along with what & how to use the data.
Recall the essential monitoring requirements that are needed to conduct maximal exercise testing in patients with CF.
Identify further insight into the comprehensive information that can be obtained from a maximal exercise test in patients with CF.
Describe how maximal exercise testing can be used in a clinical setting to prescribe exercise to patients with CF.
Access to proper care & medications specific to CF can be a challenge. Medications are expensive & insurers are becoming resistant to pay for specialty drugs. Patients & providers in CF centers require help to navigate the maze. This session will focus on the qualifications of different medication access programs. Resources & services for genetic counseling & testing will also be discussed.
Describe the various access programs & the various methods available to centers to advocate for unmet patient needs.
Discuss how to assess each individual patient to find out which programs they might appropriate.
Review how a patient can utilize genetic counseling services.
This session will discuss the concept of personalized medicine in CF, including how therapies are currently personalized & how new medications & tools will allow us to personalize therapy in a precise way.
Define the role of CFTR-targeted therapies in personalization of CF care.
Describe how patient-derived model systems may facilitate the evaluation of new therapies on a patient-specific basis.
Evaluation the role of emerging monitoring tools to track new CF patient interventions.
This session will review highlights of clinical research from the past year & look forward to the large number of new studies ahead. The increased number of studies & potential new therapies will allow even more patients & centers to get engaged in clinical research. New approaches & tools will be needed to accomplish this work. This session will address the role centers will play going forward.
Describe & summarize key results for recent trials in CF & explain their significance within the therapeutic class.
Review the upcoming trials across each therapeutic area & illustrate the increased need for patient & center participation to meet the goals of better therapies.
Demonstrate the importance of research in improving outcomes & explain how to access research information.
This session focuses on the prevalence of depression & anxiety in both individuals with CF & caregivers. The session focuses on the published results from the TIDES study, the International Guidelines on Mental Health in CF & on implementation & dissemination of these guidelines.
Summarize the prevalence of depressive & anxious symptoms among individuals with CF & parent caregivers.
Identify how psychological symptoms negatively affect disease management, including adherence, clinic attendance, health outcomes & quality of life.
Identify evidence-based intervention strategies that address symptoms of depression & anxiety.
This symposium will focus on a holistic approach to wellness strategies for patients & families through dietary, physical, emotional & lifestyle interventions. The presentations will encompass coping strategies & stress reduction, a new spin on healthy dietary considerations, evidence-based complementary healing modalities & practical exercises & their impact on patients' health.
Describe potential coping strategies & alternative therapies that promote health & wellness.
Discuss three dietary considerations to promote a healthy lifestyle for individuals with CF & their families.
List recommended exercises for individuals with CF to promote their physical well-being.
This symposium will explore some of the implications of co-production in the world of CF. Patients, family & professionals will work together to offer an introduction to the idea & to begin the process of seeing its relevance in the daily work life of all involved in designing the future of CF healthcare services.
Demonstrate that knowledgeable, skillful patients & professionals working together are essential for better outcomes in CF.
Recall that fear of new ways to collaborate must be replaced with exploration & discovery of new ways to work together.
Discuss the appreciation of the role that language plays in framing our personal understanding & action-taking.