2015 Conference Access Set (Plenaries, Symposia & Workshops)


Standard: Free

Products

*** BB05: PT & RT: Exercise Testing Interpretation & Implementing an Exercise Prescription

Preview Available

*** BB05: PT & RT: Exercise Testing Interpretation & Implementing an Exercise Prescription

Oct 9, 2015 12:30pm ‐ Oct 9, 2015 1:50pm

Exercise capacity has been shown to predict patient outcomes, independent of lung function. Routine exercise testing is recommended, not only to evaluate exercise tolerance but to obtain the most effective exercise prescription for each individual patient. This session will expose you to the ins & outs of conducting an exercise test along with what & how to use the data.

Educational Objectives:

  1. Recall the essential monitoring requirements that are needed to conduct maximal exercise testing in patients with CF.
  2. Identify further insight into the comprehensive information that can be obtained from a maximal exercise test in patients with CF.
  3. Describe how maximal exercise testing can be used in a clinical setting to prescribe exercise to patients with CF.   
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** BB08: SW/PSYCH: Managing the Maze of Medication & Access Programs

Preview Available

*** BB08: SW/PSYCH: Managing the Maze of Medication & Access Programs

Oct 10, 2015 12:30pm ‐ Oct 10, 2015 1:50pm

Access to proper care & medications specific to CF can be a challenge. Medications are expensive & insurers are becoming resistant to pay for specialty drugs. Patients & providers in CF centers require help to navigate the maze. This session will focus on the qualifications of different medication access programs. Resources & services for genetic counseling & testing will also be discussed.

Educational Objectives:

  1. Describe the various access programs & the various methods available to centers to advocate for unmet patient needs.
  2. Discuss how to assess each individual patient to find out which programs they might appropriate.
  3. Review how a patient can utilize genetic counseling services.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** BB09: SW/PSYCH: Psychosocial Needs for the Newly Diagnosed Patient: Pediatric & Adult

Preview Available

*** BB09: SW/PSYCH: Psychosocial Needs for the Newly Diagnosed Patient: Pediatric & Adult

Oct 10, 2015 12:30pm ‐ Oct 10, 2015 1:50pm

In this session we will look at the psychosocial needs of the newly diagnosed CF patient for both the pediatric & adult population. 

Educational Objectives: 

  1. Discuss the psychosocial needs for newly diagnosed pediatric & adult patients.  
  2. Identify interventions used to assist patients & families coping with a new CF diagnosis.
  3. Summarize resources available to the newly diagnosed CF patient. 
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** CG23: SW/PSYCH- Bridging the Gap: How to Become The Social Worker Your Patient Thinks You Should Be

Preview Available

*** CG23: SW/PSYCH- Bridging the Gap: How to Become The Social Worker Your Patient Thinks You Should Be

Oct 10, 2015 4:30pm ‐ Oct 10, 2015 6:30pm

This session will use survey results, presentations, film & a panel of family members/people with CF to provide participants with effective strategies for engaging people with CF & their families.

Educational Objectives: 

  1. Apply strategies for engaging people with CF & their families.
  2. Identify three methods for bridging the gap between social work & family views.
  3. Describe three ways to learn more about families, (e.g., enhanced listening skills, use of videos). 
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** One-on-One Live

Preview Available

*** One-on-One Live

Oct 10, 2015 1:00pm ‐ Oct 10, 2015 3:00pm

A live “One-on-One” conversation between an adult with CF and a CF clinician about mental health care issues.

*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** P1: Personalized Medicine

Preview Available

*** P1: Personalized Medicine

Oct 8, 2015 4:20pm ‐ Oct 8, 2015 6:00pm

This session will discuss the concept of personalized medicine in CF, including how therapies are currently personalized & how new medications & tools will allow us to personalize therapy in a precise way.

Educational Objectives:

  1. Define the role of CFTR-targeted therapies in personalization of CF care.
  2. Describe how patient-derived model systems may facilitate the evaluation of new therapies on a patient-specific basis.
  3. Evaluation the role of emerging monitoring tools to track new CF patient interventions.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** P2: Opening Doors to CF Clinical Research

Preview Available

*** P2: Opening Doors to CF Clinical Research

Oct 9, 2015 9:00am ‐ Oct 9, 2015 10:00am

This session will review highlights of clinical research from the past year & look forward to the large number of new studies ahead. The increased number of studies & potential new therapies will allow even more patients & centers to get engaged in clinical research. New approaches & tools will be needed to accomplish this work. This session will address the role centers will play going forward.

Educational Objectives:

  1. Describe & summarize key results for recent trials in CF & explain their significance within the therapeutic class.
  2. Review the upcoming trials across each therapeutic area & illustrate the increased need for patient & center participation to meet the goals of better therapies.
  3. Demonstrate the importance of research in improving outcomes & explain how to access research information.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** P3: There Is No Health Without Mental Health

Preview Available

*** P3: There Is No Health Without Mental Health

Oct 10, 2015 9:00am ‐ Oct 10, 2015 10:00am

This session focuses on the prevalence of depression & anxiety in both individuals with CF & caregivers. The session focuses on the published results from the TIDES study, the International Guidelines on Mental Health in CF & on implementation & dissemination of these guidelines.

Educational Objectives:

  1. Summarize the prevalence of depressive & anxious symptoms among individuals with CF & parent caregivers.
  2. Identify how psychological symptoms negatively affect disease management, including adherence, clinic attendance, health outcomes & quality of life.
  3. Identify evidence-based intervention strategies that address symptoms of depression & anxiety.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** S06: NRS: Partnering With Patients & Families to Promote Healthy Lifestyles

Preview Available

*** S06: NRS: Partnering With Patients & Families to Promote Healthy Lifestyles

Oct 8, 2015 2:00pm ‐ Oct 8, 2015 3:50pm

This symposium will focus on a holistic approach to wellness strategies for patients & families through dietary, physical, emotional & lifestyle interventions. The presentations will encompass coping strategies & stress reduction, a new spin on healthy dietary considerations, evidence-based complementary healing modalities & practical exercises & their impact on patients' health.

Educational Objectives: 

  1. Describe potential coping strategies & alternative therapies that promote health & wellness.  
  2. Discuss three dietary considerations to promote a healthy lifestyle for individuals with CF & their families.
  3. List recommended exercises for individuals with CF to promote their physical well-being.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99

*** S12: CLIN: CF With Fresh Eyes: A Partnership to Create the Future?

Preview Available

*** S12: CLIN: CF With Fresh Eyes: A Partnership to Create the Future?

Oct 9, 2015 10:30am ‐ Oct 9, 2015 12:20pm

This symposium will explore some of the implications of co-production in the world of CF. Patients, family & professionals will work together to offer an introduction to the idea & to begin the process of seeing its relevance in the daily work life of all involved in designing the future of CF healthcare services.

Educational Objectives: 

  1. Demonstrate that knowledgeable, skillful patients & professionals working together are essential for better outcomes in CF.
  2. Recall that fear of new ways to collaborate must be replaced with exploration & discovery of new ways to work together.
  3. Discuss the appreciation of the role that language plays in framing our personal understanding & action-taking.
*** This session was streamed live during the 2015 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/14 

Speaker(s):
Standard: $49.99