This course will present an overview of gastrointestinal conditions affecting patients with CF from the perspective of both pediatric and adult gastroenterology providers. Approaches to common intestinal, hepatic, pancreatic, and nutritional issues in CF will be discussed, along with strategies to best coordinate and develop partnerships between CF centers and local gastroenterologists to care for CF patients across the life spectrum.
Discuss and apply a systematic approach to the evaluation of Abdominal Pain, Constipation, and DIOS in patients with CF.
Create working definitions of hepatic and pancreatic disease manifestations in CF, and address strategies for optimal nutritional monitoring and management throughout the life spectrum.
Discuss colorectal cancer trends in CF, and approaches to proactive screening and surveillance in the aging CF population.
This short course, utilizing interactive discussion and case-based format, will provide recommendations regarding pharmacokinetic/pharmacodynamic and drug-drug/disease interaction considerations of inhaled and systemic drugs for children and adults with CF. Highlights of the course include intravenous and inhaled antibiotics, CFTR modulators, drug-drug/disease interactions, and interpretation of Phase 1 & 2 clinical trials in CF.
Discuss how knowledge of PK/PD principles can be used to optimize intravenous and inhaled therapy for patients.
Describe the management of interactions with CFTR modulators.
Explain the need for Phase 1 & 2 trials and discuss how the results apply to current practice.
Patients are encountering increasingly complex insurance, financial, legal, and other issues. This course will offer tips and tools for social workers, nurses, coordinators, and others on the CF care team to help effectively advocate for patients and connect them with the resources they need. The course will also provide an overview of the changing healthcare landscape and strategies for helping patients access their care and treatments.
Describe strategies for navigating common insurance issues.
Identify programs that provide financial assistance for CF medications and care.
Name appropriate referrals for legal assistance and help with Social Security disability.
This short course, Pharmacologic Management Beyond the Lungs, will provide CF clinicians with the skills and knowledge needed to prescribe advanced therapy and navigate drug interactions utilizing an interactive discussion and case-based format.
The course will address the following therapeutic areas:
Pharmacologic management of CF-related diabetes;
Medical treatment of depression and anxiety
Bone disease in CF;
Pharmacology for reproductive health.
Discuss current management of CF-related diabetes and bone disease.
Review recommendations & identify challenges regarding pharmacologic treatment of anxiety and depression in CF.
Describe options for managing reproductive health in adolescents and adults with CF.
This introductory short course on nutrition in CF is designed for healthcare providers who are new to CF. This course will emphasize the role of nutrition in optimizing CF outcomes and the practical application of medical nutrition therapy for CF throughout the lifespan. Specific topics will include: general age-appropriate nutrition recommendations, pediatric feeding behavior, pancreatic enzyme replacement, the CF gut and GI challenges, vitamin and mineral supplementation, pregnancy, CF-related diabetes, and supplemental nutrition therapy. Available educational resources and current evidence-based literature will be provided and reviewed. By the end of the course, participants will have the resources to provide basic nutrition care in CF clinical practice. This class is not intended for advanced nutrition and CF practitioners.
Describe the relationship of weight, growth, BMI, and optimal nutritional status to CF health outcomes.
Summarize GI complications, recommended vitamin and mineral supplementation, and enzyme management throughout the life cycle.
Summarize nutrition challenges and management techniques of adults who have CF including CFRD and pregnancy.
Exercise is an important functional and prognostic factor. Research in exercise in CF presents a variety of study design challenges, including selection of the patient population, study intervention, outcome measures, and data analysis plan. This short course is designed to provide the participant with the fundamentals needed to conduct research in exercise in CF, culminating in a group design activity- bring your ideas!
Describe the knowledge gap and research question you wish to answer in exercise and physical activity in Cystic Fibrosis.
Identify exercise and physical activity assessment tools and outcome measures needed to answer the research question.
Design a trial with appropriate inclusion and excluision criteria, sample size calculation, and data analysis plan.
This course will focus on teaching care providers how to provide empirically-supported parent education on management of common behavioral concerns among children with CF. Topics will include improving cooperation during daily medical cares and at mealtimes, communicating with children and their siblings about CF, screening for the need for behavioral intervention services, and other areas of interest.
Summarize to provide guidance to parents about evidence-based behavioral management strategies to overcome medical regimen adherence barriers and reduce common child behavioral concerns.
Identify parent-child communication challenges and strategies for improving family communication.
Employ knowledge of empirically-supported screening tools to identify children in need of behavioral intervention.