2017 Short Course Access Set

Nov 1, 2017 ‐ Nov 4, 2017

Preview Available

SC01: CLIN: Expanding Horizons for the Mid-Career Coordinator (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

This course is intended for new and seasoned research coordinators. It will focus on less common areas of the job and how to return to the basics to improve performance over the long term.

Learning Objectives:

1. Demonstrate the complicated treatment regimens and lifestyle challenges faced by CF patients daily to increase understanding of the potential burdens to study participation.
2. Discuss issues related to both short-term and long-term burnout and strategies to avoid it.
3. Compare and contrast how what an RC learns at the beginning of their career shapes their work over time.

Short Course Speaker(s):

• Dana B. Dorman, B.S.N.,M.S.N., Dartmouth Hitchcock Medical Center

Preview Available

SC02: CLIN: Absolutely Practical CF-Gastroenterology Course (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

This course will present an overview of gastrointestinal conditions affecting patients with CF from the perspective of both pediatric and adult gastroenterology providers. Approaches to common intestinal, hepatic, pancreatic, and nutritional issues in CF will be discussed, along with strategies to best coordinate and develop partnerships between CF centers and local gastroenterologists to care for CF patients across the life spectrum.

Learning Objectives:

1. Discuss and apply a systematic approach to the evaluation of Abdominal Pain, Constipation, and DIOS in patients with CF.
2. Create working definitions of hepatic and pancreatic disease manifestations in CF, and address strategies for optimal nutritional monitoring and management throughout the life spectrum.
3. Discuss colorectal cancer trends in CF, and approaches to proactive screening and surveillance in the aging CF population.

Short Course Leader(s):

• James M. Abraham, M.D., Physician, University Of Minnesota
• Jillian Sullivan, M.D., University of Vermont Children's Hospital

Short Course Speaker(s):

• Deepak Agrawal, M.D., University Texas Southwestern
• David N. Assis, M.D., Assistant Professor of Medicine
• Molly A. Bozic, M.D., Assistant Professor of Clinical Pediatrics, Indiana Univ. School of Medicine
• Jill Dorsey, M.D.
• Meghana N. Sathe, M.D., Assistant Professor, Univ. of Texas Southwestern Medical School

Preview Available

SC03: CLIN: The Perils of CF Pharmacotherapy: A Practical Approach to Inhaled & Systemic Drugs (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

This short course, utilizing interactive discussion and case-based format, will provide recommendations regarding pharmacokinetic/pharmacodynamic and drug-drug/disease interaction considerations of inhaled and systemic drugs for children and adults with CF. Highlights of the course include intravenous and inhaled antibiotics, CFTR modulators, drug-drug/disease interactions, and interpretation of Phase 1 & 2 clinical trials in CF.

Learning Objectives:

1. Discuss how knowledge of PK/PD principles can be used to optimize intravenous and inhaled therapy for patients.
2. Describe the management of interactions with CFTR modulators.
3. Explain the need for Phase 1 & 2 trials and discuss how the results apply to current practice.

Short Course Speaker(s):

• Paul Beringer, Pharm.D.
• Hettie M. Janssens, M.D., Ph.D.

Preview Available

SC04: CFF: Advocating for Your Patients: Tips & Tools for Helping People With CF & Their Families (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

Patients are encountering increasingly complex insurance, financial, legal, and other issues. This course will offer tips and tools for social workers, nurses, coordinators, and others on the CF care team to help effectively advocate for patients and connect them with the resources they need. The course will also provide an overview of the changing healthcare landscape and strategies for helping patients access their care and treatments.

Learning Objectives:

1. Describe strategies for navigating common insurance issues.
2. Identify programs that provide financial assistance for CF medications and care.
3. Name appropriate referrals for legal assistance and help with Social Security disability.

Short Course Speaker(s):

• Jennifer Y. Gray, B.S.
• Beth Sufian, J.D.

Speaker(s):

• Lauren Willis, B.S., R.R.T., N.P.S., A.E.-C, CF Care Program Coordinator
• Anne Willis, M.A., Senior Director of Patient Access Programs
• Jeffery Zobell, Pharm.D., Clinical Pharmacist

Preview Available

SC05: NRS-CLIN: Pharmacological Management: Beyond the Lungs (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

This short course, Pharmacologic Management Beyond the Lungs, will provide CF clinicians with the skills and knowledge needed to prescribe advanced therapy and navigate drug interactions utilizing an interactive discussion and case-based format.

Learning Objectives:

The course will address the following therapeutic areas:

1. Pharmacologic management of CF-related diabetes;
2. Medical treatment of depression and anxiety
3. Bone disease in CF;
4. Pharmacology for reproductive health.
5. Discuss current management of CF-related diabetes and bone disease.
6. Review recommendations & identify challenges regarding pharmacologic treatment of anxiety and depression in CF.
7. Describe options for managing reproductive health in adolescents and adults with CF.

Short Course Speaker(s):

• Marina Litvin, M.D., Assistant Professor of Medicine
• Bradley McCrory, Pharm.D.
• Melissa S. Putman, M.D., M.Sc., Pediatric and Adult Endocrinologist

Preview Available

SC06: NTR: CF Nutrition 101 (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

This introductory short course on nutrition in CF is designed for healthcare providers who are new to CF. This course will emphasize the role of nutrition in optimizing CF outcomes and the practical application of medical nutrition therapy for CF throughout the lifespan. Specific topics will include: general age-appropriate nutrition recommendations, pediatric feeding behavior, pancreatic enzyme replacement, the CF gut and GI challenges, vitamin and mineral supplementation, pregnancy, CF-related diabetes, and supplemental nutrition therapy. Available educational resources and current evidence-based literature will be provided and reviewed. By the end of the course, participants will have the resources to provide basic nutrition care in CF clinical practice. This class is not intended for advanced nutrition and CF practitioners.

Learning Objectives:

1. Describe the relationship of weight, growth, BMI, and optimal nutritional status to CF health outcomes.
2. Summarize GI complications, recommended vitamin and mineral supplementation, and enzyme management throughout the life cycle.
3. Summarize nutrition challenges and management techniques of adults who have CF including CFRD and pregnancy.

Short Course Leader(s):

• Laura Grande, M.S., R.D.
• Alexandra Wilson, M.S., RDN, CDE

Short Course Speaker(s):

• Karen M. Maguiness, M.S., R.D., C.S.P., Pediatric Pulmonology Dietitian
• Maria R. Mascarenhas, M.B.B.S.

Preview Available

SC07: PT& RT: Research & Exercise in CF: Where Do We Start? Where Do We Go? (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

Exercise is an important functional and prognostic factor. Research in exercise in CF presents a variety of study design challenges, including selection of the patient population, study intervention, outcome measures, and data analysis plan. This short course is designed to provide the participant with the fundamentals needed to conduct research in exercise in CF, culminating in a group design activity- bring your ideas!

Learning Objectives:

1. Describe the knowledge gap and research question you wish to answer in exercise and physical activity in Cystic Fibrosis.
2. Identify exercise and physical activity assessment tools and outcome measures needed to answer the research question.
3. Design a trial with appropriate inclusion and excluision criteria, sample size calculation, and data analysis plan.

Short Course Leader(s):

• Larry C. Lands, M.D., Ph.D.
• Anne K. Swicher, P.T., Ph.D., C.C.S., FAPTA

Short Course Speaker(s):

• Helge Hebestreit, M.D.
• Ruth Keogh, Ph.D.
• Jane E. Schneiderman, Ph.D.
• Rhonda Szczesniak, Ph.D., Assistant Professor of Biostatistics

Preview Available

SC08: SW/PSYCH: Positive Parenting Interventions for Common Behavioral Issues in Children With CF (TICKET REQUIRED)

Nov 1, 2017 3:30pm ‐ Nov 1, 2017 7:30pm

This course will focus on teaching care providers how to provide empirically-supported parent education on management of common behavioral concerns among children with CF. Topics will include improving cooperation during daily medical cares and at mealtimes, communicating with children and their siblings about CF, screening for the need for behavioral intervention services, and other areas of interest.

Learning Objectives:

1. Summarize to provide guidance to parents about evidence-based behavioral management strategies to overcome medical regimen adherence barriers and reduce common child behavioral concerns.
2. Identify parent-child communication challenges and strategies for improving family communication.
3. Employ knowledge of empirically-supported screening tools to identify children in need of behavioral intervention.

Short Course Leader(s):

• Jennifer L.. Butcher, Ph.D.
• Robin S. Everhart, Ph.D.