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This course is intended for new and seasoned research coordinators. It will focus on less common areas of the job and how to return to the basics to improve performance over the long term.
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This course will present an overview of gastrointestinal conditions affecting patients with CF from the perspective of both pediatric and adult gastroenterology providers. Approaches to common intestinal, hepatic, pancreatic, and nutritional issues in CF will be discussed, along with strategies to best coordinate and develop partnerships between CF centers and local gastroenterologists to care for CF patients across the life spectrum.
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This short course, utilizing interactive discussion and case-based format, will provide recommendations regarding pharmacokinetic/pharmacodynamic and drug-drug/disease interaction considerations of inhaled and systemic drugs for children and adults with CF. Highlights of the course include intravenous and inhaled antibiotics, CFTR modulators, drug-drug/disease interactions, and interpretation of Phase 1 & 2 clinical trials in CF.
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Patients are encountering increasingly complex insurance, financial, legal, and other issues. This course will offer tips and tools for social workers, nurses, coordinators, and others on the CF care team to help effectively advocate for patients and connect them with the resources they need. The course will also provide an overview of the changing healthcare landscape and strategies for helping patients access their care and treatments.
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This short course, Pharmacologic Management Beyond the Lungs, will provide CF clinicians with the skills and knowledge needed to prescribe advanced therapy and navigate drug interactions utilizing an interactive discussion and case-based format.
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The course will address the following therapeutic areas:
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This introductory short course on nutrition in CF is designed for healthcare providers who are new to CF. This course will emphasize the role of nutrition in optimizing CF outcomes and the practical application of medical nutrition therapy for CF throughout the lifespan. Specific topics will include: general age-appropriate nutrition recommendations, pediatric feeding behavior, pancreatic enzyme replacement, the CF gut and GI challenges, vitamin and mineral supplementation, pregnancy, CF-related diabetes, and supplemental nutrition therapy. Available educational resources and current evidence-based literature will be provided and reviewed. By the end of the course, participants will have the resources to provide basic nutrition care in CF clinical practice. This class is not intended for advanced nutrition and CF practitioners.
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Exercise is an important functional and prognostic factor. Research in exercise in CF presents a variety of study design challenges, including selection of the patient population, study intervention, outcome measures, and data analysis plan. This short course is designed to provide the participant with the fundamentals needed to conduct research in exercise in CF, culminating in a group design activity- bring your ideas!
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This course will focus on teaching care providers how to provide empirically-supported parent education on management of common behavioral concerns among children with CF. Topics will include improving cooperation during daily medical cares and at mealtimes, communicating with children and their siblings about CF, screening for the need for behavioral intervention services, and other areas of interest.
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