During this interactive session on the fundamentals of quality improvement, participants will be placed into artificial care teams in order to work through the steps of the model for improvement. These artificial care teams will work to improve the care processes at a fictional CF care center at which patient outcomes have been declining. The participants will then apply lessons learned to a process for their own CF center.
As research coordinators gain experience, their scope of responsibility and opportunity will grow. Research teams will look to them to find solutions to challenging issues and foster improvement of and within the group. This session will address the unique role of the mid-career coordinator and offer material to enhance their knowledge base, improve effectiveness and efficiency of the individual and their groups, and creatively rise to challenges for their teams.
Experts will discuss the use of oral, inhaled, and intravenous antibiotics for challenging pathogens that are encountered in CF: MRSA, Pulmonary Non-tuberculous mycobacteria (NTM), multi-drug resistant (MDR) Pseudomonas aeruginosa, B. cepacia complex, Stenotrophomonas maltophilia, and Achromobacter species. In addition, we will discuss the diagnosis and management of allergic bronchopulmonary aspergillosis (ABPA). The session will be practical with a focus on the approach to actual CF patients and the nuances of individual cases will be discussed. Handouts will be provided with dosing and clinical scenarios to consider oral, inhaled, and intravenous antibiotics for these pathogens.
This session is designed to examine the practice and evidence behind pharmacological management for CF-related arthropathy, sinus disease, constipation/DIOS and GERD. It will include both inpatient and outpatient management approaches and is suitable for clinicians (physicians, pharmacists, and mid-level providers (PA's, APN, or NP)) caring for individuals with CF.
Note: Speaker Bradford Woodworth's presentation was not recorded at his request.
This short course, focusing on nutrition, is designed for dietitians/nutritionists and other CF care team members who possess basic experience in CF nutrition and are interested in expanding their knowledge of nutritional concepts and practical applications. Topics covered may include pregnancy, transplant, appetite stimulants, enzymes, tube feeding, vitamins and minerals, diabetes, and infant care. Information presented will incorporate current guidelines, new research, practical skills, and case studies. Knowledge gained during this course will help improve the quality of nutrition care delivered to CF patients.
Despite therapeutic advances and increasing life expectancy in the CF community, lung transplantation can be a treatment option for select persons with CF and advanced lung disease. The decision to pursue transplantation is a complex balance of individual choice, physician judgment of medical indication and an individual's candidacy; criteria established by transplant programs and often not fully appreciated by CF programs. This course provides a framework for exploring dynamics of referrals while sustaining the individual's commitment and intention to achieve their desired goal. We will address how partnerships between CF and Transplant teams can afford more transplant opportunities and explore emotional turmoil that can be experienced during the pursuit of new lungs. With exclusive viewing of a personal documentary, 'Fight Like a Boss', a CF adult's transplant journey, attendees will discuss mental health challenges and develop strategies to enhance outcomes.
The session will arm clinicians with information to help them in conversations with their patients regarding insurance coverage and access to therapies with an emphasis on assisting patients that have Medicare coverage. The session will also help clinicians in understanding the role of the specialty pharmacy and pharmacists in a complex patchwork of insurance and benefits.
Establishing strong, trusting relationships is a fundamental aspect of partnering with individuals with CF and families. Participants in this course will be introduced to three practical, evidence-based skillsets: (1) Building deeper levels of trust, including the ability to explore the patient's goals and perspectives; (2) Creating more open dialogue, by asking open-ended questions, listening actively, and responding with empathy; and (3) Developing stronger partnerships in the care process through goal-setting conversations. The course consists of short presentations and small-group breakout sessions led by trained facilitators. Participants will strengthen their communication competencies by receiving individualized feedback as they apply new skills and practice effective communication approaches. Participants will create a plan for implementing fundamental, relationship-centered skills upon returning to their clinical environments.
This presentation was not recorded at the request of the presenters.
The breathing and postural demands of the trunk muscles are often compromised in people with cystic fibrosis, leading to secondary impairments such as postural deficits, stress urinary incontinence (SUI), pain and other functional impairments. This hands-on course will introduce clinicians to an innovative clinical model that incorporates neuromuscular-based core recruitment strategy, driven by external cueing of both the pelvic floor and the diaphragm. Linking the pelvic floor and diaphragm to work as a team, will equip participants to move beyond basic pelvic floor muscle strengthening exercises for SUI to simultaneously address proximal control, continence, breathing mechanics, functional impairments, pain and more through a dynamic foundation of support.