The aim of this session is to explore the use of various quality improvement techniques, such as surveys and adherence monitors, when engaging families and those with CF to improve care. This workshop will highlight the impact of quality improvement in CF care coordination and follow up.
Paula H. Lomas, M.A.S., R.N., CCRP, Nurse Coordinator, Morristown Medical Center
This workshop will increase our knowledge about cystic fibrosis by presenting research identifying high-risk groups for poor health outcomes in CF, evaluating the real-world use of specific CF medications and identifying regional variations in the CF population using several large CF database sources.
This session will describe the challenges faced when dealing with a newly diagnosed adult with Cystic Fibrosis (CF). Medical, psychosocial and educational considerations will be discussed. Patient cases will be presented with a proposed approach for this unique population. Recommended educational resources will be reviewed as well as a brief look into the patient experience of late adult CF diagnosis.
Electronic health records, apps, tablets and social media - even centers that have been electronic for years are only starting to scratch the surface of what is possible. Electronic interventions hold significant potential for improving the delivery of care to our CF patients. This workshop will present how some centers have used electronic media, how our families and patients can help and how they perceive these new options.