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32nd Annual North American Cystic Fibrosis Conference

S24--SW/PSYCH-NRS-CLIN: *'Adulting' With CF

Oct 20, 2018 2:30pm ‐ Oct 20, 2018 3:55pm


Description

As life expectancy increases among CF patients, the model of care is expanding to include more focus on adult responsibilities, co-morbidities, and challenges of daily living and quality of life. There are many unique and challenging concerns for aging CF patients and the families and communities that support them. This symposium will offer a wide range of interesting topics on 'adulting with CF' to enhance understanding of adult issues and engage persons with CF and their families more fully in care. Four expert speakers will discuss: disclosure related to CF diagnosis, sexual/reproductive health for women with CF, career and employment, and the CF spouse's journey.

Learning Objectives:

  • Identify that adult CF patients and their spouses have multiple challenges and stressors-- balancing lifestyle, career, health, and family.
  • Identify important care needs for females with CF from adolescence through adulthood, specifically related to sexual and reproductive health.
  • Define the complexities of disclosure of CF diagnosis at all stages of disease.

Symposium Chair(s):

Symposium Speaker(s):

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