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32nd Annual North American Cystic Fibrosis Conference

SC08-SW/PSYCH- NTR-CLIN: Dynamic Interactions Between CF Teams & Transplant Teams to Improve Referral Processes & Promote Outcomes

Oct 17, 2018 3:30pm ‐ Oct 17, 2018 7:30pm


Despite therapeutic advances and increasing life expectancy in the CF community, lung transplantation can be a treatment option for select persons with CF and advanced lung disease. The decision to pursue transplantation is a complex balance of individual choice, physician judgment of medical indication and an individual's candidacy; criteria established by transplant programs and often not fully appreciated by CF programs. This course provides a framework for exploring dynamics of referrals while sustaining the individual's commitment and intention to achieve their desired goal. We will address how partnerships between CF and Transplant teams can afford more transplant opportunities and explore emotional turmoil that can be experienced during the pursuit of new lungs. With exclusive viewing of a personal documentary, 'Fight Like a Boss', a CF adult's transplant journey, attendees will discuss mental health challenges and develop strategies to enhance outcomes.

Learning Objectives:

  • Review the current state-of-the-art in CF Care that impacts the timing and referral of persons with CF for consideration of transplant.
  • Explore best practices from the perspective of CF teams and transplant teams with objective to enhance understanding of the transplant requirements which encourage partnership with patients and families across the transplant spectrum.
  • Identify strategies and interventions that optimally support teams, caregivers and patient intention to achieve transplantation.

Short Course Leader(s):

Short Course Speaker(s):

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