Description

The session will highlight strategies for assisting patients and families on a successful CF Journey. During the workshop, we will present ideas of what patients and families need throughout their lifespan to be successful across their lifespan.

Learning Objectives:

• Identify and describe the elements of a successful CF journey across the life span.
• Explain and summarize the importance of adherence in the CF journey.
• Discuss how to communicate and integrate support with CF patients and families.

Workshop Chair(s):

• Natalia E. Argel, B.S.N., R.N.-B.C, C.P.N., Pulmonary Research Nurse Coordinator
• Traci Bell, R.N., B.S.N., C.P.N., Pediatric Pulmonary Case Manager

Workshop Speaker(s):

• Eileen Barr, M.S., Certified Genetic Counselor
• Melissa Basile, Ph.D., Research Scientist
• Haley Hlela, M.S.N., R.N., ACCNS-P, CPHQ, Safety Quality Specialist
• Nadia Islam, Ph.D., Teaching Motivational Interviewing Skills to Parents of Children and Adolescents with CF
• Carolyn Snell, Ph.D., Psychologist