Description
The session will highlight strategies for assisting patients and families on a successful CF Journey. During the workshop, we will present ideas of what patients and families need throughout their lifespan to be successful across their lifespan.
Learning Objectives:
- Identify and describe the elements of a successful CF journey across the life span.
- Explain and summarize the importance of adherence in the CF journey.
- Discuss how to communicate and integrate support with CF patients and families.
Workshop Chair(s):
- Natalia
E. Argel,
B.S.N., R.N.-B.C, C.P.N.,
Pulmonary Research Nurse Coordinator
- Traci
Bell,
R.N., B.S.N., C.P.N.,
Pediatric Pulmonary Case Manager
Workshop Speaker(s):
- Eileen
Barr,
M.S.,
Certified Genetic Counselor
- Melissa
Basile,
Ph.D.,
Research Scientist
- Haley
Hlela,
M.S.N., R.N., ACCNS-P, CPHQ,
Safety Quality Specialist
- Nadia
Islam,
Ph.D.,
Teaching Motivational Interviewing Skills to Parents of Children and Adolescents with CF
- Carolyn
Snell,
Ph.D.,
Psychologist