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33rd Annual North American Cystic Fibrosis Conference


S12--CLIN-NRS-SW/PSYCH: *Sustaining Daily Care in the Era of Precision Medicine


Nov 1, 2019 10:30am ‐ Nov 1, 2019 12:15pm

Description

Performing daily treatments is complex, time consuming and poses a significant daily challenge for many persons with CF. This session will explore methods allowing patients and health care teams to better achieve goals for care through assessment, collaboration, and technological advancement. These solutions will be all the more important as we encounter more specific therapeutic options in an expanding healthcare system.

Learning Objectives:

  • Illustrate a standardized way to assess the challenges and barriers to performing current CF related treatments and examine international methods to improve CF health outcomes through ease of care delivery.
  • Explain the role of technology and care team-patient/family partnerships in improving nutritional health for children living with CF.
  • Examine the opportunities for collaborations among persons with CF and their providers to design new strategies for sustained care.

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