Although death and dying occur in the community of cystic fibrosis (CF), they remain challenging in our clinical practice, with little training or preparation for the clinicians to encounter these experiences and discussions with persons with CF and their families. Acknowledging and addressing suffering and dying is often episodic, occurring acutely and in crises, rather than acknowledged as the powerful partner to living with this illness. This symposium provides opportunities to embrace the significance of our experiences through the stories of death and dying, offering insights into what is truly meaningful and helpful at the end-of-life, and offering approaches to start and continue these important conversations. Faculty presentations offer unique perspectives including recognition of dignity work in the context of approaching death; clinical challenges in caregiver emotional distress; devoting a medical career to easing pain and suffering; and an inspiring personal journey.
Explain and embrace the challenges in end-of-life care in CF.
Identify common themes in dignifying death in CF.
Identify our strengths as CF clinicians in emotional, spiritual, and existential support we provide to patients near end of life.