Outcomes for people with CF continue to improve with exciting new therapies. These therapies are expected to improve outcomes even further, yet, we know that some people with CF will continue to progress to advanced lung disease and require special attention. This course will educate CF care teams about the advanced lung disease initiative. This includes palliative care, how to manage advanced lung disease, lung transplant referral, and post lung transplant care. These topics will be highlighted through the introduction of toolkits, case studies, an example of a shared care model through the transplant journey, and a review of recent and upcoming clinical care guidelines.
Review the complex medical and psychosocial care needs of individuals with advanced CF lung disease.
Define existing and upcoming guidelines for the clinical care of individuals with advanced CF lung disease including general CF care, palliative care, referral for lung transplantation, and post-lung transplant care.
Discuss the roles of CF care team members and effective partnerships with other health care providers when caring for individuals with advanced CF lung disease.