30th Annual North American Cystic Fibrosis Conference

P3: You Can Observe A Lot by Just Watching: Lessons from The CFF Patient Registry

Oct 29, 2016 9:00am ‐ Oct 29, 2016 10:00am

Standard: $49.99

Description

This plenary session will review the role of observational research in improving our understanding of cystic fibrosis, the care of patients with cystic fibrosis and opportunities to improve this care. The speaker will highlight the role of the Cystic Fibrosis Foundation Patient Registry in the conduct and further development of observational research in CF including epidemiology, comparative effectiveness research, and quality improvement.

Educational Objectives:
  1. Define the role of observational research in improving our understanding of cystic fibrosis care and outcomes.
  2. Describe the role of the Cystic Fibrosis Foundation Patient Registry (CFFPR) in epidemiologic and comparative effectiveness research.
  3. Define the role of the CFFPR in quality improvement efforts.

*** This session was streamed live during the 2016 NACFC. To watch free archived versions of the live streamed sessions, register here: https://arc.nacfconference.org/cff/live/16

Speaker(s):

  • Wayne J. Morgan, M.D., Professor; CF Center Director, Univ. of AZ, Univ. Med. Ctr.

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