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31st Annual North American Cystic Fibrosis Conference

W07 - W07: NRS-NTR: Collaborative Approach to Palliative Care: The Journey

Nov 2, 2017 9:45am ‐ Nov 2, 2017 11:05am


As life expectancy increases among Cystic Fibrosis (CF) patients, it's clear that Palliative Care is becoming an important aspect in the management of patients. Complexities of the disease require a multidisciplinary approach so that comprehensive quality care can be experienced by these patients. Attendees of this session can expect to see presentations and discussions aspects of palliative care, including pain, mental health, nutrition and lung transplantation.

Learning Objectives:

  1. Describe new interventions to help improve outcomes in palliative care and transplant, including screening, planning and clinical interventions.
  2. Identify measures other than objective testing that might be used in when assessing the need for palliative care.
  3. Summarize of the impact of nutrition in Palliative Care.

Workshop Chair(s):

Workshop Speaker(s):


  • Deborah Friedman, Ph.D. : Deborah Friedman: Cystic Fibrosis Foundation and Cystic Fibrosis Foundation Therapeutics Mental Health Coordinator Award Grant Support Vertex Pharmaceuticals, Inc. Charitable Grant Award

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