Patient registries & collaboratives for learning, research and improvement have existed for centuries but are now undergoing explosive growth and innovation. This points the way to a care model for CF that is fit for the future. In this presentation we will (a) review the past, present and future state of registries & collaboratives (b) introduce 3 ways to create healthcare value (c) introduce a design that the CF community could use to build a care model thatâ€™s fit for the future. Imagine a CF collaboratory capable of delivering better measured outcomes & value while creating conditions for personalized coproduction of care & collaborative learning- all based on advanced biomedical research
Review the past, present & future state of registries & collaboratives.
Identify three ways to create healthcare value
Describe a design that the CF community could use to build a care model that is fit for the future.
Dartmouth-Hitchcock Medical Center Population Health & Measurement
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