28th Annual North American Cystic Fibrosis Conference

P3: CF Advisory Board Track: From Codman to Collaboratories: A Care Model for CF That's Fit for the Future

Oct 11, 2014 9:00am ‐ Oct 11, 2014 10:00am

Standard: $49.99


Patient registries & collaboratives for learning, research and improvement have existed for centuries but are now undergoing explosive growth and innovation. This points the way to a care model for CF that is fit for the future. In this presentation we will (a) review the past, present and future state of registries & collaboratives (b) introduce 3 ways to create healthcare value (c) introduce a design that the CF community could use to build a care model that’s fit for the future. Imagine a CF collaboratory capable of delivering better measured outcomes & value while creating conditions for personalized coproduction of care & collaborative learning- all based on advanced biomedical research


  • Eugene C. Nelson, D.Sc., M.P.H., Director, Dartmouth-Hitchcock Medical Center Population Health & Measurement

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