Cystic Fibrosis has sometimes been called an 'invisible illness' because signs or symptoms of the disease may not always be outwardly apparent. This symposium will discuss some of the challenges that accompany living with an invisible illness, including navigating disclosure of illness status, normalizing the experience, and managing a common 'invisible' symptom - CF-related pain. The symposium will also provide information about the development of a CF-specific Community Partnership program to support individuals in coping with these challenges. Participants will deepen their understanding of living with an invisible illness, and utilize this knowledge to identify practical strategies to help patients and their families.
Discuss the challenges of living with an 'invisible illness' and normalizing the experience.
Describe research on topics related to managing 'invisible' aspects of the disease, including disclosure of illness status and CF-related pain.
Identify current strategies utilized in the development of a CF-specific community program to support individuals in coping with these challenges.