This symposium will provide a current assessment of policy and economic trends that affect the cystic fibrosis coverage and access landscape. The symposium will include findings from a CF access to care study and a presentation on design and application of cost-effectiveness analyses in policy making. The session will culminate in a moderated discussion of how the CF provider community can use evidence to advocate for improved access to care and adequate, affordable coverage for patients.
Summarize the current landscape of cost and coverage research and policies as they pertain to CF care.
Explain the role of cost effectiveness in precision medicine and its potential application in CF.
Interpret the findings of a national CF coverage and access study and discuss actions CFF leaders, CF clinicians, individuals with CF and families can take to prepare for pending changes in health costs, coverage, and access.
Note: Speaker Scott Grosse's presentation was not recorded at his request.