Erin Moore B.S.

Family Partner, Cincinnati Children's Hospital

Erin Moore, B.S., works on the Pulmonary Team at Cincinnati Childrens Hospital Medical Center as a Family Partner. As such, Erin collaborates with the clinical staff to identify unmet needs, design and test innovations to improve care and outcomes, bridge the patient and clinician communities, and ensure the perspective of families and patients are represented. She is a leader in the effort to create a Collaborative Chronic Care Network (C3N) for Cystic Fibrosis, which would bring patients, clinicians and researchers together to test existing and create new solutions and tools to better manage health and care in the CF community. Erin is a board member at the Cincinnati Chapter of the Cystic Fibrosis Foundation. She is the chair of the Mission Committee and serves as State Advocacy Chair, raising awareness in congress of the impact that decisions related to health have on the CF community. She works closely with the Cystic Fibrosis Foundations national office where she is a member of their Patient Engagement Committee. Erin has been invited to advise national and international efforts. Erin has served as an external healthcare innovation advisor with Genentech, providing insights on how increased focus on patient centeredness and real world evidence is changing the healthcare ecosystem and how these trends may affect drug development. Erin served as a briefer to the JASONs 2014 Data for Individual Health report that is now being use by the Office of the National Coordinator for Health IT to create a culture of health in the country. She is a current member of Academy Healths CPR Roundtable. In 2015, Erin served as an advisor to The Robert Wood Johnson Foundations Data for Health initiative, working to create the framework for how diverse sectors can better collect, share, and use health information to improve health and promote wellness in the country. Erin has worked with the Office of the National Coordinator for Health IT and the White House Office of Science and Technology Policy on the new Precision Medicine initiative announced by the President in January. Erin has spoken at the Institute of Medicine, AHRQ, Stanford Universitys MedicineX, The American Board of Pediatrics and the North American Cystic Fibrosis Conference.